The Power of Participation in Research with Fannie Johnson

Voices of Inclusive Research

Welcome to the Voices of Inclusive Research Podcast.

A space where we amplify the voices of underrepresented communities in clinical research, sharing stories and insights to foster diversity and inclusivity in healthcare.

In this episode, Renarda welcomes Fannie Johnson, a long-time participant in clinical research, to share her journey and insights. She discusses her 20-year involvement in the Memory and Aging Project, emphasizing how clinical research has positively impacted her health and well-being.

Together, they address the deep-seated fears in communities of color about participating in clinical trials and explore ways to transition from fear to trust.

Fannie’s story highlights the importance of education, awareness, and community engagement in overcoming the historical mistrust that often hinders participation in research. She advocates for researchers to be more present in the community and to provide clear communication about the benefits of clinical trials.

Must-Hear Insights and Key Moments

• Impact of Participation: Fannie shares how her two-decade involvement in the Memory and Aging Project has improved her memory and well-being, showcasing the tangible benefits of participating in clinical research.
• Overcoming Fear: She addresses fears within communities of color about clinical trials, highlighting how transparency and sharing personal experiences can help alleviate these concerns.
• Building Trust: Regular, respectful communication from researchers has helped build Fannie’s trust, showing how crucial consistent engagement is in fostering confidence in clinical research.
• Educational Value: Fannie emphasizes the importance of educating communities on clinical research benefits to overcome historical mistrust and encourage more inclusive participation.
• Community Engagement: Researchers should actively engage with communities and provide clear, transparent information to build trust and enhance inclusivity in clinical trials.

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We Want to Hear Your Voice!

Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Kapitel

1. Introduction to Voices of Inclusive Research (00:00:00)

2. Meet Our First Guest: Miss Fannie Johnson (00:01:05)

3. Addressing Fear in Clinical Research (00:01:57)

4. Miss Johnson's Research Journey (00:04:54)

5. The Benefits and Challenges of Participation (00:07:02)

6. Building Trust in Communities of Color (00:09:07)

7. Final Thoughts and Messages (00:12:37)