It was the deadliest string of shark attacks the world has ever seen. In 2011, sharks in Réunion, a beautiful island, way out in the Indian Ocean started biting people way more than ever before and with lunatic violence. The epidemic forced local surfers, politicians, and business owners into a proxy war with ocean lovers and conservationists worldwide, where long simmering tensions boiled over. Réunion: Shark Attacks in Paradise is the story of what happened on this beautiful island, and t ...
…
continue reading
Inhalt bereitgestellt von Katie Wright. Alle Podcast-Inhalte, einschließlich Episoden, Grafiken und Podcast-Beschreibungen, werden direkt von Katie Wright oder seinem Podcast-Plattformpartner hochgeladen und bereitgestellt. Wenn Sie glauben, dass jemand Ihr urheberrechtlich geschütztes Werk ohne Ihre Erlaubnis nutzt, können Sie dem hier beschriebenen Verfahren folgen https://de.player.fm/legal.
Ähnelt Staying Connected – Staying Connected
A call-in show from author Nora McInerny that lets real people get real honest about how they're really doing. Operators(me) are standing by to take your calls. In case you didn't know, we're still making episodes that are available exclusively on Nora's Substack!
…
continue reading
Hosted by Laura Cathcart Robbins, a writer and a recovery thriver and survivor, Laura found herself in an all too familiar position. In September 2018, she was the only black woman in the room at Brave Magic, a famed writer’s retreat. After it was over, she wrote about her “only one” experience in The Huffington Post and comments started flooding into her DM. These comments were from people from all races, ethnicities, creeds, and nationalities who had felt “othered”. Laura beautifully inter ...
…
continue reading
“LA Made” is a series exploring stories of bold Californian innovators and how they forever changed the lives of millions all over the world. Each season will unpack the untold and surprising stories behind some of the most exciting innovations that continue to influence our lives today. Season 3, "LA Made: The Other Moonshot," tells the story of three Black aerospace engineers in Los Angeles, who played a crucial role in America’s race to space, amid the civil unrest of the 1960s. When Joan ...
…
continue reading
Most of us have gotten at least a little emotional at some point recently. It’s natural. But why do we have emotions and how much should we pay attention to them on any given day? Can we learn to skillfully choose which emotions to listen to and which ones to just let move on by? In More Than A Feeling, the latest podcast from Ten Percent Happier, host Saleem Reshamwala goes on a real life quest to find the answers to these questions. He’ll experiment with neuroscientists, dive into stories ...
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continue reading
A live podcast show, that’s like a morning radio show, just much better. Live from 6h00-8h00 Monday, Wednesday and Friday. Clever, funny, outrageous and sometimes very silly. Come for the guests, stay for the laughter. Also check out our other shows on The Real Network for more entertainment.
…
continue reading
As She Rises brings together local poets and activists from throughout North America to depict the effects of climate change on their home and their people. Each episode carries the listener to a new place through a collection of voices, local recordings and soundscapes. Stories span from the Louisiana Bayou, to the tundras of Alaska to the drying bed of the Colorado River. Centering the voices of native women and women of color, As She Rises personalizes the elusive magnitude of climate cha ...
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continue reading
Explore Something New. Interviews on Science, Sex, Society and Sports. From CERN Particle Physicists and Professional Casino Cheats to Erotic Hypnotists and Olympic Athletes, every week we sit down with a guest from a different walk of life. The story is never the same but the goal always is, to learn something new. Named Best Interview Podcast in 2023, nominated in 2021 and 2022.
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continue reading
Love is more than you think. From the creators of Criminal. New episodes twice a month. Part of the Vox Media Podcast Network.
…
continue reading
Jim Bacarro and Saab Magalona started one of the first local podcasts back in 2018. From debates about trashy reality shows to talking about the importance of voter registration, they have cultivated quite an engaged community who have dubbed them their /podparents/. Jim and Saab may be the ones doing the talking but they definitely make their listeners feel heard.
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Bridget Porter (Metz) sharing Connor’s story with Loeys-Dietz syndrome
Manage episode 450361299 series 2295478
Inhalt bereitgestellt von Katie Wright. Alle Podcast-Inhalte, einschließlich Episoden, Grafiken und Podcast-Beschreibungen, werden direkt von Katie Wright oder seinem Podcast-Plattformpartner hochgeladen und bereitgestellt. Wenn Sie glauben, dass jemand Ihr urheberrechtlich geschütztes Werk ohne Ihre Erlaubnis nutzt, können Sie dem hier beschriebenen Verfahren folgen https://de.player.fm/legal.
Bridget Porter (Metz) joins the show to share her son, Connor’s, story with Loeys-Dietz syndrome, which he was diagnosed with after he died of an aortic dissection at the age of 13. Connor was seen by a geneticist a few years before he died, but was told there was no need for a genetic test. Bridget and her family have been involved in efforts to raise awareness and funds for research since his death in 2020.
Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. You can also find information and resources through the John Ritter Foundation, johnritterfoundation.org
Links to resources, events, and research opportunities:
VEDS Collaborative Research Study: Email vedscoll@ohsu.edu
Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:
Join a Walk for Victory:
Help and Resource Center
https://marfan.org/ask
https://thevedsmovement.org/ask
Support
Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: https://staying-connected.printify.me/products
You can make a one-time donation to Translucent One LLC at https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8, or you can also support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone.
Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:
Jon Holtom
Adventuresinlove4Andie
Ashton Tanner
Ryan Rodarmer
Benjamin Weisman
Scott
Fiona McIver
Disclaimer
The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.
117 Episoden
Teilen
Manage episode 450361299 series 2295478
Inhalt bereitgestellt von Katie Wright. Alle Podcast-Inhalte, einschließlich Episoden, Grafiken und Podcast-Beschreibungen, werden direkt von Katie Wright oder seinem Podcast-Plattformpartner hochgeladen und bereitgestellt. Wenn Sie glauben, dass jemand Ihr urheberrechtlich geschütztes Werk ohne Ihre Erlaubnis nutzt, können Sie dem hier beschriebenen Verfahren folgen https://de.player.fm/legal.
Bridget Porter (Metz) joins the show to share her son, Connor’s, story with Loeys-Dietz syndrome, which he was diagnosed with after he died of an aortic dissection at the age of 13. Connor was seen by a geneticist a few years before he died, but was told there was no need for a genetic test. Bridget and her family have been involved in efforts to raise awareness and funds for research since his death in 2020.
Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. You can also find information and resources through the John Ritter Foundation, johnritterfoundation.org
Links to resources, events, and research opportunities:
VEDS Collaborative Research Study: Email vedscoll@ohsu.edu
Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:
Join a Walk for Victory:
Help and Resource Center
https://marfan.org/ask
https://thevedsmovement.org/ask
Support
Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: https://staying-connected.printify.me/products
You can make a one-time donation to Translucent One LLC at https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8, or you can also support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone.
Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:
Jon Holtom
Adventuresinlove4Andie
Ashton Tanner
Ryan Rodarmer
Benjamin Weisman
Scott
Fiona McIver
Disclaimer
The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.
117 Episoden
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Ähnelt Staying Connected – Staying Connected
It was the deadliest string of shark attacks the world has ever seen. In 2011, sharks in Réunion, a beautiful island, way out in the Indian Ocean started biting people way more than ever before and with lunatic violence. The epidemic forced local surfers, politicians, and business owners into a proxy war with ocean lovers and conservationists worldwide, where long simmering tensions boiled over. Réunion: Shark Attacks in Paradise is the story of what happened on this beautiful island, and t ...
…
continue reading
A call-in show from author Nora McInerny that lets real people get real honest about how they're really doing. Operators(me) are standing by to take your calls. In case you didn't know, we're still making episodes that are available exclusively on Nora's Substack!
…
continue reading
Hosted by Laura Cathcart Robbins, a writer and a recovery thriver and survivor, Laura found herself in an all too familiar position. In September 2018, she was the only black woman in the room at Brave Magic, a famed writer’s retreat. After it was over, she wrote about her “only one” experience in The Huffington Post and comments started flooding into her DM. These comments were from people from all races, ethnicities, creeds, and nationalities who had felt “othered”. Laura beautifully inter ...
…
continue reading
“LA Made” is a series exploring stories of bold Californian innovators and how they forever changed the lives of millions all over the world. Each season will unpack the untold and surprising stories behind some of the most exciting innovations that continue to influence our lives today. Season 3, "LA Made: The Other Moonshot," tells the story of three Black aerospace engineers in Los Angeles, who played a crucial role in America’s race to space, amid the civil unrest of the 1960s. When Joan ...
…
continue reading
Most of us have gotten at least a little emotional at some point recently. It’s natural. But why do we have emotions and how much should we pay attention to them on any given day? Can we learn to skillfully choose which emotions to listen to and which ones to just let move on by? In More Than A Feeling, the latest podcast from Ten Percent Happier, host Saleem Reshamwala goes on a real life quest to find the answers to these questions. He’ll experiment with neuroscientists, dive into stories ...
…
continue reading
A live podcast show, that’s like a morning radio show, just much better. Live from 6h00-8h00 Monday, Wednesday and Friday. Clever, funny, outrageous and sometimes very silly. Come for the guests, stay for the laughter. Also check out our other shows on The Real Network for more entertainment.
…
continue reading
As She Rises brings together local poets and activists from throughout North America to depict the effects of climate change on their home and their people. Each episode carries the listener to a new place through a collection of voices, local recordings and soundscapes. Stories span from the Louisiana Bayou, to the tundras of Alaska to the drying bed of the Colorado River. Centering the voices of native women and women of color, As She Rises personalizes the elusive magnitude of climate cha ...
…
continue reading
Explore Something New. Interviews on Science, Sex, Society and Sports. From CERN Particle Physicists and Professional Casino Cheats to Erotic Hypnotists and Olympic Athletes, every week we sit down with a guest from a different walk of life. The story is never the same but the goal always is, to learn something new. Named Best Interview Podcast in 2023, nominated in 2021 and 2022.
…
continue reading
Love is more than you think. From the creators of Criminal. New episodes twice a month. Part of the Vox Media Podcast Network.
…
continue reading
Jim Bacarro and Saab Magalona started one of the first local podcasts back in 2018. From debates about trashy reality shows to talking about the importance of voter registration, they have cultivated quite an engaged community who have dubbed them their /podparents/. Jim and Saab may be the ones doing the talking but they definitely make their listeners feel heard.
…
continue reading
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