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Sickle Cell Awareness from the Patients and Experts with Maximal Being & Dr. Scott & Kyle | Part 1, Podcast 83
Manage episode 446187711 series 3499097
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In this episode of the Maximal Being podcast, Jacky P discusses sickle cell disease with Dr. Scott Peslak and Kyle Smith. Dr. Scott explains that sickle cell is a genetic disorder affecting hemoglobin, leading to stiff red blood cells that can block blood flow and cause pain, organ damage, and other complications. Kyle, a sickle cell warrior, emphasizes the importance of understanding one's sickle cell status and the need for better care models beyond emergency rooms. They highlight the role of infusion centers and the need for more sickle cell experts. Dr. Scott also discusses the potential of new therapies and the importance of national registries for better understanding and care of sickle cell patients.
Topics
- Sickle Cell Definitions
- Personal Experiences and Challenges with Sickle Cell
- Care and Support for Sickle Cell Patients
- Future Directions and Research in Sickle Cell
This week’s guests are Dr. Scott Peslak, a physician scientist at the University of Pennsylvania, who caters to sickle cell and thalassemia patients. Kyle Smith, a nonprofit professional who owns Crescent Foundation, a nonprofit organization dedicated to serving individuals with sickle cell disease in the Philadelphia area.
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