Quality of Life Measures
Manage episode 312495020 series 3236617
Measuring quality of life is important, particularly in clinical trials, to capture the broader impacts of treatment beyond just measuring seizures.
To help understand what outcome measures are and why they are important to spoke to Dr Jenny Downs, Program Head of Disability Research at the Telethon Kids Institute in Perth.
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Links:
- Information on Quality of Life Inventory-Disability (QI-Disability)
- Validation study of QI-Disability
- Want to help developing quality of life measures for children with genetic epilepsy?
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