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PKU With Danielle From Maryland
Manage episode 463063320 series 3485028
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In this episode I talk with Danielle, a parent of a daughter Elsa with PKU and children's book author. Her book Rosey Racoon Has PKU is available on Amazon, See link below. In this episode I talk with Danielle about Her daughter's diagnosis with PKU, and the fears and challenges she went through as a parent, her daughter's symptoms when her levels are high VS when they are normal, The PKU diet, Advice to new parents, her book and much more.
Be sure to check out Rosey Racoon Has PKU,
https://www.amazon.com/Rosey-Raccoon-Has-Danielle-Freeman/dp/B0DP7V3WJ7/ref=sr_1_1?crid=JWP20L48CIPZ&dib=eyJ2IjoiMSJ9.2cLjc2XCV1FFqrwpK-Aicf_pKS6CDtvw6d_v6Udn5HI14e5r_aWcuRcvQ3g4nNE7GnJTsBVr2mDQMdr8Ip5CiVy0crKMCufcYKlnm-6qs7Yvjckvh5EGCGOnKNkOBkkh-h2cd6DMumtCVjY2GjiZ9g.wAbWMtFkDAIDP0T880pdYysz9iMl4mx6lvpsujCEapE&dib_tag=se&keywords=danielle+freeman+book&qid=1737785660&sprefix=Danielle+Free%2Caps%2C166&sr=8-1
Chapter Markers
00:00 Intro
02:16 diagnisis story
04:45 Most challenging moments early on
06:15 How a high blood level affects Danielle's daughter
07:13 How low blood levels affect Danielle's daughter
07:50 Perfect Level
08:26 Protein tolerance
09:21 PKU Explained
10:27 Improvements Danielle Would Like ti see in the newborn screening
12:33 Tips for managing the low protein diet
15:12 Medical food coverage
16:48 products and resources that are helpful
19:31 Projects & initiatives
20:37 Inspiration for Rosie The Racoon Has PKU
21:49 Main Message & take away
22:47 Process of writting and challenges
24:15 Book intentions & reader responses
29:00 Book statistics
29:31 How the book contributes to PKU Awareness
31:26 future books
32:10 How parenting a child with PKU has changed Danielle's prespective
33:15 Advice for other parents
35:19 Hopes for PKU advancement & treatment
37:41 Danielle's future as both an advocate & an Author
38:26 conclusion
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1. PKU With Danielle From Maryland (00:00:00)
2. [Ad] & so much more (00:24:00)
3. (Cont.) PKU With Danielle From Maryland (00:24:50)
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