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Neuromyoitis Optica with Nicki From New York
Manage episode 482789788 series 3485028
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In this episode of Rare Connection, host Joanna Ball speaks with [Guest Name], who shares their powerful journey with [Rare Disease]. Together, they discuss diagnosis challenges, treatment paths, daily life, and advocacy work. Whether you're a patient, caregiver, medical professional, or just curious—this conversation brings rare insight into a rarely understood condition.
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This episode is available on YouTube at Rare Chef, Joanna’s advocacy and cooking channel. All content will now be posted here instead of TikTok Live, as live streaming has been paused due to age verification delays.
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Get a shirt from our Bonfire shop under Rare Chef—with designs for Rare Connection, Rare Chef, and invisible illness awareness. Proceeds help fund groceries for Joanna’s cooking videos and keep the channel going.
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⚠️ Disclaimer: All content is for educational and awareness purposes only. Always consult a qualified medical professional for health decisions. Please do not offer medical advice in the comments—even if you're a healthcare professional.
🧠 Suicide Prevention Resources
- Call or text 988
- Text HOME to 741741 (Crisis Text Line)
Kapitel
1. Neuromyoitis Optica with Nicki From New York (00:00:00)
2. [Ad] & so much more (00:13:34)
3. (Cont.) Neuromyoitis Optica with Nicki From New York (00:14:24)
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