Mental Health and Rare Disase with Frank From New York

Rare Connection

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🧠 Mental health is rarely optional when you're living with a rare disease. Join Joanna, host of Rare Connection, for a powerful live conversation with Frank, a rare disease patient and mental health advocate who's working to make support more accessible for our community.

🌍 Living with sarcoidosis and other chronic conditions, Frank brings a deeply personal and professional perspective. He recently moderated a panel on mental health at the World Orphan Drug Congress USA and is now leading efforts to help rare disease patients find affordable, qualified mental health care providers.

📊 Did you know?

• 75% of rare disease patients report symptoms of anxiety
• Over 66% experience depression
• Many are bullied, misunderstood, or feel completely alone

🎧 In this live episode, we’ll explore:

• How rare diseases impact mental health
• Why so many patients feel dismissed or isolated
• What it will take to get emotional support to those who need it most
• How YOU can help push for mental health equity in rare care

💬 Ask questions live in the chat, and be part of this important conversation.

🔔 Subscribe to Rare Chef so you don’t miss the live broadcast or future episodes.

📌 Resources & links will be available in the video description after the stream.
📲 For audio listeners, check your show notes to send me a text or support the show.

📣 Let’s break the silence around rare disease and mental health. See you live!

#RareConnection #RareDisease #MentalHealthMatters #Sarcoidosis #RareChef #PatientAdvocacy #YouAreNotAlone

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