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Down Syndrome & Adoption as an Option
Manage episode 310287081 series 3051496
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Stephanie Thompson still vividly remembers when her son Christopher, now 27 years old, received a diagnosis of Down syndrome. As a young woman and a first time mother, the diagnosis came as a shock. What she wishes her younger self knew? That it would be okay. Stephanie worked for eleven years in many different roles within the Down Syndrome Association of Greater Cincinnati and has deep insights into when, where and how a diagnosis of Down syndrome is given to parents and how this can be handled better. Today, Stephanie is the Director of the National Down Syndrome Network (NDSAN), whose mission is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family.
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Links and Resources
National Down Syndrome Adoption Network
Resources for Patients
- New & Expectant parent information
- NDSAN video for new & expectant parents
- List of local Down syndrome parent groups
- Babies with Down Syndrome: A New Parent’s Guide
Resources for Medical Professionals
- Delivering a Down syndrome diagnosis
- Additional Resources for Medical Professionals
Stephanie’s blog post on the Grey Genetics News Corner: Adoption as an Option: The National Down Syndrome Adoption Network
Stephanie’s interview on The Lucky Few podcast: Adoption & Down Syndrome w/Stephanie Thompson from the NDSAN
Connect with NDSAN on Social Media:
NDSAN on Instagram: @ndsan321
NDSAN on Twitter: @dsadoption
“National Council on Disability Recommends More Regulation of NIPT.” Genome Web, October 23, 2019.
Genetic Testing and the Rush to Perfection, National Council on Disability, October 23, 2019.
Patient Stories on Twitter: @GreyGeneticsPod
Patient Stories on Instagram: @patientstoriespodcast
Patient Stories is sponsored by Grey Genetics, an independent telehealth genetic counseling and consulting company. Book an appointment with a genetic counselor specialized in your area of concern. All genetic counseling appointments take place over secure, HIPAA-compliant video-conferencing or by phone.
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