Telling Their Stories: Discrimination at the Doctor for Children with Disabilities

OPENPediatrics

In this Complex Care Journal Club podcast episode, Dr. Stefanie Ames discusses a qualitative study that explores family experiences of discrimination in health care for children with medical complexity and disability. She describes the value of partnering with people with lived experience in research, implications for clinical practice, and important next steps from this work. SPEAKER Stefanie Ames, MD, MS Assistant Professor, Division of Critical Care Department of Pediatrics, University of Utah School of Medicine HOST Kristina Malik, MD Assistant Professor of Pediatrics University of Colorado School of Medicine Medical Director, KidStreet Pediatrician, Special Care Clinic, Children's Hospital Colorado DATES Initial publication: September 6, 2023 CITATION Ames SG, Malik K. Telling their Stories: Discrimination at the Doctor for Children with Disabilities. 09/2023. OPENPediatrics. Online Podcast. Links: https://youtu.be/xkoS0qhCtiE, https://soundcloud.com/openpediatrics/telling-their-stories-discrimination-at-the-doctor-for-children-with-disabilities. JOURNAL ARTICLE REFERENCED Ames SG, Delaney RK, Houtrow AJ, et al. Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity. Pediatrics. 2023;152(1):e2022060975. doi:10.1542/peds.2022-060975 OTHER ARTICLES REFERENCED Cook S, Mauskar S, Berry JG. Discriminating Against Children With Medical Complexity. Pediatrics. 2023 Jul 1;152(1):e2023061604. doi: 10.1542/peds.2023-061604. PMID: 37357723. Marshall W. Improving care for CMC is also a systems issue. [Comment on the article ""Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity""]. Pediatrics July 2023. TRANSCRIPT https://op-docebo-images.s3.amazonaws.com/Transcripts/Discrimination+at+the+Doctor_Ames_090623.pdf Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: [e-mail]