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Coping with Brain Tumours: A Conversation with Sam
Manage episode 382535692 series 3164719
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The "Aunty M Brain Tumours Talk Show" is an informative and inspiring podcast featuring discussions about brain tumours and the experiences of those affected by them. In this episode, Sam shares her journey with brain tumours, beginning with her diagnosis in June 2013. She initially experienced symptoms like pulsatile unilateral tinnitus, balance problems, odd posture, and back and abdomen pain. Sam went through multiple medical appointments, leading to the discovery of two brain tumours—one in her cerebellum and another in the occipital lobe. The one in her cerebellum was surgically removed, but she continues active monitoring.
Sam discusses the psychological challenges of living with the uncertainty of her condition and the possibility of future surgeries due to her diagnosis of neurofibromatosis type 2. She highlights the importance of a support network, her new partner, friends, and counselling in coping with these challenges. Sam also talks about the impact of fatigue, speech difficulties, and clumsiness on her daily life.
The conversation touches on the significance of some people in naming their tumours, the need for knowledge and control, and the kindness of caregivers during hospital stays. Sam's story exemplifies resilience and the diverse ways individuals cope with life-changing diagnoses.
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