From Surviving Cancer (twice) to Building Coalitions featuring Rachel Westlake

Patient Advocacy Now

Rachel Westlake was a teenage kid with long, curly, red hair when she was diagnosed with large cell lymphoma at the age of 15. During more than a year of experimental treatment protocols, Rachel began to understand her own mortality, something none of her peers had any concerns about whatsoever. She beat the cancer and learned the importance of self-advocacy along the way. In 2015, she received another cancer diagnosis while living in a “healthcare desert.” Using her acquired self-advocacy skills, Rachel called on her old oncology team in NY. She got them on board, underwent a stem cell transplant, and beat cancer for the second time.

Today, Rachel is a dedicated health care advocate focused on creating compassionate, personalized, and inclusive care systems. As a self-advocacy expert and educator, she assists organizations in implementing patient-centered strategies to enhance care outcomes and foster collaborative cultures. She’s also an instrumental force behind CHCAO, the Coalition of Healthcare Advocacy Organizations.

Listen in as Rachel walks listeners through her highly personal medical and emotional journey that includes beating cancer twice and confronting the death of her father by suicide. Rachel’s life experiences gave her the courage and strength to identify others who needed help, and she was inspired to help as many as possible. Rachel discovered the profession of healthcare advocacy and dove in, realizing the impact she could have as a BCPA.

Through Rachel Westlake Consulting, LLC (RWC), she specializes in self-advocacy education, connecting patients, healthcare professionals, and industry stakeholders. Her background in coalition leadership, startup strategy, product development, and research informs her balanced, partnership-driven approach to addressing patient and healthcare community needs.