#073: “Haciendo Lo Invisible, Visible”. Crys's Journey of Invisible Battles and Visible Triumphs as Latina with MS in the US

MS-Perspektive - The Multiple Sclerosis Podcast

Crys was diagnosed with MS at the age of 11. She talks about her experiences as a first-generation Latina and her mission on social media. You can find all questions and answers on my blog: https://ms-perspektive.com/073-crys

Today I’m talking to Crys about her life with multiple sclerosis as a first generation Latina. Crys was diagnosed at age eleven and experienced her most severe episode at age 13 when she was paralyzed from the neck down. She recovered from this episode thanks to the devoted support of her family, especially her mother.

Nevertheless, to this day it remains a great challenge to have information about the disease, its symptoms and treatment options available in Spanish. To help children, adolescents and young adults in similar situations feel better than she did, Crys explains her life and the daily challenges of living with a chronic illness with a zest for life.

Table of Contents

• Introduction – Who is Crystal Bedoya?
• Diagnosis and status
• Invisible Battles with MS
• Visible Triumphs with MS
• Wishes and goals
• Quickfire Q&A Session
• Farewell

Introduction – Who is Crystal Bedoya?

Crystal is a disabled creator and writer from the warm and sunny state of Arizona, USA. Despite her early MS diagnosis at age 11, she loves traveling and exploring new countries, tracking down cute coffee shops with the best matcha, reading, staying active, going to concerts, and spending time with her loved ones.

Through her social media platforms, Crystal shares relatable content for people with chronic illnesses and helps educate others about living with MS as a young first-generation Latina.

How and where can interested people find you online?

I am on various platforms that include Instagram, TikTok, Threads, Twitter, Facebook, and YouTube as @CrystalBedoya

Is there anything else you would like to share with the listeners?

I’m always here for support, I love connecting with more MS friends online, so don’t be afraid to send me a message. I’m here to chat, answer questions, and be as supportive as I can be.

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Thank you so much, Crys, for sharing your journey so far and creating content for people who are in a similar situation to you in one way or another. I hope life has many beautiful things in storefor you and rewards your strength with wonderful people and experiences.

See you soon and try to make the best out of your life, Nele

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