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HOPE: On the Other Side of the Door
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Inhalt bereitgestellt von Schizophrenia Care Project. Alle Podcast-Inhalte, einschließlich Episoden, Grafiken und Podcast-Beschreibungen, werden direkt von Schizophrenia Care Project oder seinem Podcast-Plattformpartner hochgeladen und bereitgestellt. Wenn Sie glauben, dass jemand Ihr urheberrechtlich geschütztes Werk ohne Ihre Erlaubnis nutzt, können Sie dem hier beschriebenen Verfahren folgen https://de.player.fm/legal.
HOPE: On the Other Side of the Door is a passion project by Dr. Ken Campos MD, DFAPA. Dr. Campos is on a quest to help caregivers of mental illness family members, specifically schizophrenia. After 25 years of helping patients in hospitals and prevention centers, he became passionate about helping the caregivers and family members that cope daily and wanted to provide a community to get them support. In this bi-monthly interview series, Dr. Ken Campos talks to practitioners, caregivers, non-profits, family members and other community support resources. He is driven to create a clearing for a balanced respectful life for those with schizophrenia and their caregivers internationally. Please Join him and share with other caregivers of schizophrenia.
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Inhalt bereitgestellt von Schizophrenia Care Project. Alle Podcast-Inhalte, einschließlich Episoden, Grafiken und Podcast-Beschreibungen, werden direkt von Schizophrenia Care Project oder seinem Podcast-Plattformpartner hochgeladen und bereitgestellt. Wenn Sie glauben, dass jemand Ihr urheberrechtlich geschütztes Werk ohne Ihre Erlaubnis nutzt, können Sie dem hier beschriebenen Verfahren folgen https://de.player.fm/legal.
HOPE: On the Other Side of the Door is a passion project by Dr. Ken Campos MD, DFAPA. Dr. Campos is on a quest to help caregivers of mental illness family members, specifically schizophrenia. After 25 years of helping patients in hospitals and prevention centers, he became passionate about helping the caregivers and family members that cope daily and wanted to provide a community to get them support. In this bi-monthly interview series, Dr. Ken Campos talks to practitioners, caregivers, non-profits, family members and other community support resources. He is driven to create a clearing for a balanced respectful life for those with schizophrenia and their caregivers internationally. Please Join him and share with other caregivers of schizophrenia.
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Dr. Ken discusses the causes of psychosis. He explains what it actually means. He explains what causes diagnosis of schizophrenia. ©2019 Dr. Ken Campos
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HOPE: On the Other Side of the Door
Dr. Ken reviews the book "Clozapine" by Meyer & Stahl. He explains the aspects of the book that might make you want to read it.
Terry Peterson has been living with schizophrenia. He tells his story and explains how schizophrenia patients can achieve a balanced, healthy life.
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HOPE: On the Other Side of the Door
Dr. Ken reviews the book Surviving Schizophrenia by E. Fuller Torrey MD. Dr. Ken gives his understanding of the various aspects of the book's 5th edition. He goes through each part in detail.
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HOPE: On the Other Side of the Door
Dr. Ken Campos discusses his brand new video series, Hope at Home.
Today Dr. Ken talks to Charles Sayer about the environment inside of the hospitals. They also discuss legal matters surrounding patients of schizophrenia.
Dr. Ken is joined by Royal Fraser to discuss the use of yoga to help out the caregivers.
Dr. Ken is joined by Steven Morgan to discuss Soteria House. Steven explains his experiences in the mental health system.
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HOPE: On the Other Side of the Door
Dr. Ken is joined by Adolph Vidal, LCSW, for a discussion around the laws after a hospital stay. The discussion delves into what is legal and what is not surrounding medication. It is a lively and interesting discussion.
Dr. Ken’s guest is a man who had a dark period in his life with hopelessness, lack of self-love, and suicidal thoughts. He is a personal acquaintance from a local club. This interview is to help bring awareness to the issue of suicide in the context of a caregiver of a loved one who is living with schizophrenia. It is the goal to gain a greater understanding of this difficult and somewhat mysterious topic of self-destructive urges, and what to do about them…
Dr Ken gives another short lecture on the SchizoPhrenia CARE project today. First, a little more on the cultural background of mental health. Traditional Western medicine is currently the main form of medical practice in the United States and the West today. Dr Ken spent four years doing lab research in brain chemistry related to psychosis. Please see the pdf document from Dr Ken on psychosis available at the website listed below. Some believe that severe mental illness is a myth. More on culture: the term "allopathic medicine” is typically used and mis-used to refer to traditional Western medicine. But it is not really allopathic at all, as that means a medicine based upon classical Greek practices which was based upon “humors,” and balancing them with treatments opposite to the symptoms. To begin to bridge the culture gap, since 1989 the NIH has been exploring and studying Traditional Chinese medicine and Hindu Indian Aruydevic medicine theory and practices. Today, this study group is become a formal center of NIH. It is named the National Center for Integrative and Complementary Medicine. The other podcast episode on the Soteria program shows how it represents an effort to change the Western medical cultural model to one of greater healing and compassionate management of those folks in crisis with psychosis. Another group of interest is The “Hearing Voices Network.” It is a movement started in the United Kingdom, in Manchester, England in 1988. One goal is to normalize the experiences of hearing voices, having visions, having tactile sensations and other sensory experiences. One of their aims is to promote and develop self-help groups. This group and movement also represents a big culture shift and change. More on the Schizophrenia Care Project. First, the name of the project. The word “project” comes from self-help and personal transformation groups and refers to a community based project which is not a personal goal or project. Also, it refers to bringing the possible into the realm of the real. The vision, goal or mission of the SchizoPhrenia CARE project is to promote and support balanced, healthful, meaningful, and respectful lives for those living with schizophrenia, hearing voices, or chronic psychosis and their caregivers. The first word is “Balanced.” This gets to the notion that life can be thought of as having areas in it that are like spokes on a bicycle wheel. Some of those spokes are health, fitness, diet, exercise, learning, productive activities, self-care, friendships, family, job or work, finances, fun things to do, hobbies, religious and spiritual activities, meditation, sleep and rest, etc. So, a balanced life is a life where a person strives to have the same length on the different spokes of the wheel, or parts of life. Next, the word is “Healthful.” Health is made up of at least three main parts. First is the physical body, diet, exercise, rest, and self-care. Next, the mental health, this is about a person’a habitual thoughts and attitudes, having lively friends and interests to keep the mind active. And third is spiritual health. This is one’s relationship to a Higher Power, or God, or for some folks, an active involvement in a supportive, loving and accepting church community. The word “Meaningful” refers to a humanistic idea that our lives are a story. There were events and things that happened in our childhoods, events at school. Perhaps for many listening to this podcast, events related to odd and frightening experiences and behavior, and even emergency contact with police and mental health hospital emergency rooms. After the Nazi holocaust in WWII, a prisoner who survived, a psychiatrist named Victor Frankl, wrote a book “Man’s Search for Meaning.” One of his questions was why did some prisoners wither and die while others lived while both were in those miserable conditions of cold and malnutrition. In his book, he states that finding meaning in one’s life is part of the answer. The other things are to be responsible for one’s self, and care for other people. The main reason for living is to find meaning in one’s life. Also, he adds that each of us has the freedom to find his or her own meaning in what we do, what we experience, and how we handle those experiences. So for the listeners, there may have to be a re-telling of your own life story, as you find new and acceptable meaning. The last word in the phrase is “Respectful.” This is the opposite of the shameful negative stigma. Many groups want to change the culture about stigma over mental illness. But rather that fight against it, the phrase Dr Ken has chosen for the project is “respectful lives.” So respectability is the goal, the thing we are striving toward for those living with schizophrenia, chronic psychosis and those who are hearing voices. Respectability is the new normal. Respectability begins with self-respect and self-love. The logo for the project is a heart-shaped partial outline surrounding a human head. Within the head are little triangles. These symbolize the thoughts, ideas, memories and experiences (both inner and outer experiences) of the person living with schizophrenia and those hearing voices. The heart outline symbolizes the core value of the project & staff. That is the value of care & love, bridge building, of seeing the person living with schizophrenia as not fundamentally different from one’s self. Caring for and loving one’s fellow human being in the same degree that one loves and cares for oneself is a moral value. It is a moral value which requires growth, stability and support to live and act at that particular level of moral development. This is a stage of development beyond and above the selfish and only self-serving moral level. The short hand logo name is SP-CARE. That is a funny abbreviation of SchizoPhrenia as SP. That’s kinda like spelling schizophrenia with a capital S at the beginning and a capital P in the middle. But it works. The next big arena for the project is adding its weight to the already existing support and empowerment groups. The idea here is that there are many ideas which can help the family or the board and care staff take care of someone who is living with schizoiphrenia. Many people already know what to do. The challenge is to embody what we know, to keep up the motivation to act on what we know and to live the values and principles to help all involved. This has started with an online accountability FaceBook community public group. The crowning achievement envisioned for the project is local and international sets of long term residential, education, support and empowerment homes for those living with chronic psychosis, living with schizophrenia, and those hearing voices in acute crisis. The homes have the name of New Hope Campus, and the goal is to have sets of three in a community staffed with a good number of folks who will care for, support and form meaningful relationships with the residents over time. There will be diet and exercise support. Outside holistic psychiatrists will be used to oversee any who may require medications. Funding through large scale international charitable donations was discussed. Lastly the audience is invited support the vision of balanced, healthful, meaningful and respectful lives for those living with schizophrenia and to subscribe to the websites below.…
This is first talk on the Schizophrenia Care Project. The theme will be the project’s goals, vision, sub-parts and mission. First language and “words” were discussed. There is a theory of human communication that holds that the words we use have an impact on our sense of identity, our place in the world, our self-esteem and things of that nature. The word “psychosis” was reviewed in some detail. It is a medical word, a jargon, a technical word. Psychosis is a word like the word “fever.” It describes a set of experiences, reported perceptions / senses and observed behaviors. Just like “fever” the medical word “psychosis” does not imply or define a specific diagnosis. Of considerable interest are those reported perceptions, experiences of the person having them, that are not shared with others in the immediate vicinity. Some would classify ESP, extra-sensory perception, clairvoyance, and such as hallucinations. Hearing the voice of “God” as some religious mystics hear is also in this category of an experience that is not shared by others in the same room, or right nearby. Regarding disease or pathology, the definition of schizophrenia as a phenomena was reviewed. It is also in the PDF report available at the www.DrKenCampos.com website. Some religious and spiritual systems include experiences that could be termed hallucinations and delusions. For those appropriate sub-cultures, this is not a problem, not an illness. Religious experiences that occur in those accepting group settings, that is in a church or spiritual community, were not considered to be part of illness. Examples were given. So, one might conclude that a certain sub-set of fevers or of psychotic experiences can be part of the normative human life. It leads one to a question. What can the family, the community, and the mental health practitioners do about this. The World Health Organization studies of those with a schizophrenia diagnosis were discussed. Narrative reframing and motivational interviewing were both discussed. The group called the “Hearing Voices Network” which exists as part of the “Hearing Voices Movement” seeks to raise awareness that there unusual experiences in any of the five senses, are not in themselves pathological, and do not immediately qualify as a diagnosis of schizophrenia. They aim to re-define the “psychotic experiences” of their members and normalize them. They generally avoid the word “psychosis.” Indeed, severe mental illness had carried strong negative connotations and negative associations both in our Western and American culture, and results in unnecessary suffering on the part of some people who are living with such symptoms, diagnoses, and labels. The SchizoPhrenia CARE Project is an umbrella for several things, first is this podcast aimed at educating and supporting the caregivers of some loved on who is living with schizophrenia or who is “hearing voices.” Next, the project is a platform for written educational material, including periodic newsletters, and an initial book on Hope and advice for the caregivers to find a foundation of support in their own lives so that they may more effectively care for the loved one living with schizophrenia or “hearing voices.” Online support groups are another spin off of the podcast and SP CARE project. Dr Ken envisions both moderated and unmoderated purely peer led groups for empowering the caregivers. Additionally, the is to be a private level support and empowerment group. Accountability and support to implement the practices of both self-care and new ways of supporting their loved one who is living with a diagnosis of schizophrenia or who is “hearing voices” is the key here. The word “eccentric” was reviewed and discussed, too. Dr Ken reviewed some of his hospital based experiences, too. Like aspirin or tylenol for a fever, the acute use of the dopamine blocking medications, the anti-psychotic medications is a very humane thing to offer. Despite the importance of self-determination, there also exists a group of people who are at risk for sever or damaging consequences of their unusual experience as well. This smaller group is the set of people who require a paternalistic intervention with the use of anti-psychotic medications for the short term at least. Safety is key. Lastly the residential care part of SchizoPhrenia CARE project was discussed. “New Hope Campus - with the neighborhood or city name attached” are the names of such houses. The goal here is to help people with supportive, holistic and well staffed group home for long term residence.…
Dr. Byron G. De Long joins Dr. Ken to discuss the triad of self-care. He goes into detail on each of the three aspects of self-care and how they can help the caregiver a great deal.
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HOPE: On the Other Side of the Door
Today's episode of Hope on the Other Side features Dr. Ken Campos and a discussion of Soteria House. Dr. Ken discusses the history and benefits of Soteria House in this, the first part of this series.
The focus is on food and diet at home as a way toward balanced, healthful, meaningful, and respectful lives for the person living with Schizophrenia and their caregivers, too. In psychiatric and neuroscience research it is clear that schizophrenia is caused by different problems in the mechanisms of brain function and brain anatomy. One of particular note is inflammation in the brain. This can be thought of as an inappropriate immune response in the brain. Some of the antipsychotic medications side effects were reviewed again, as in a previous podcast. Risk-Benefit analysis logic was reviewed: There is a RISK that based upon positive symptoms (hallucinations & delusions) that a person may engage in harmful behaviors toward self or other people. In many if not most cases this benefit outweighs the serious but lesser risk of the side effect of the medications. Changes in the way a person’s body processes food was one particularly important side effect. This results in something called the “metabolic syndrome.” It is a cluster of conditions — increased blood pressure, high blood sugars, excess body fat around the waist, and abnormal cholesterol and / or triglyceride levels. When they occur together they increase the risk of heart disease, stroke and diabetes. Diabetes, type II used to be called “adult onset diabetes” is caused by a person’s genetics and lifestyle including diet. There is insulin resistance, and that means that your body does not respond to insulin which is a hormone that allows cells to take in sugar (glucose) from the blood as nutrition. There can be excessive chronic thirst, frequent urination, and unexplained weight loss. Later there are long term problems such as organ damage, particularly the kidneys and the eyes. Healing cuts and wounds can be slow or impossible. The Schizophrenia Care Project is setting up accountability groups to help folks actually use these diets in their day to day lives at home. The hope is to make these accountability groups for Caregivers and folks living with schizophrenia fun and game-like. First, become aware of what meals are served at home, and the eating habits and snacking habits, of the loved one living with schizophrenia, is important. A food and meal diary can be useful here. Exercise levels may be low to start with because of both the so-called negative symptoms which involve lack of drive and initiative, and due to the sedating quality of some of the medications. Regular mealtimes and eating moderate amounts of the healthiest foods is advised. Bringing back the “family dinner time” home meal ritual is a way to keep positive meaning, health and respectfulness in people’s lives. Second, if you have the luxury of getting a registered dietician’s services that would be great, and possibly the hospital dietician can give a consultation on the way back home. Personal food likes and dislikes are important, note any food allergies. The goal for the loved one living with schizophrenia is to enjoy and to live the best life possible. Mealtime fellowship and good food is part of a good life. Brain research exists on inflammation & immune system over-reaction in a sub-set of people living with schizophrenia. Aspirin and some other anti-inflammatory meds have been used as part of the treatment. Check with your doctor about this for you. The Mayo Clinic recommendations were reviewed for eating healthy carbohydrates, fiber-rich foods, heart-healthy fish, and the “good” fats. Those things include starches and fruits, vegetables and whole grains, legumes (beans, peas and lentils). Also, low fat dairy products are recommended….but some in the anti-imflammatory camp recommend no dairy at all. Their recommendations also include fiber-rich foods such as nuts and legumes. For meat eaters, heart healthy fish are a good alternative to high-fat meats. Those fish include cod, tuna, halibut. The ones rich in omega-3-fatty acids which promote heart health are salmon, mackerel, tuna, sardines and bluefish. The good fats are monounsaturated and polyunsaturated fats that can lower cholesterol levels. They include avocados, almonds, pecans, walnuts, olives. Also oils such as canola, olive and peanut. It is good to avoid saturated fats in animal proteins, beef, hot-dogs, sausage and bacon. Also avoid trans-fats in processed food snacks, and baked goods made with shortening. Limiting your cholesterol intake is another basic Mayo Clinic recommendation: So you may wish to limit your eating liver, egg yolks, and organ meats. The two foods most associated with inflammation are gluten and dairy (particularly high fat content dairy, such as certain cheeses). Gluten, a wheat, barley and rye protein has received a lot of attention in recent years. There is a serious condition affecting several different ethnic groups, not just those folks of northern European descent. Spice up your meals with turmeric. This is common in Indian cuisine and it is a wonderful anti-inflammatory spice. Also, yogurt, and pro-biotics have been shown to reduce stress and anxiety, which are very common concerns for those living with schizophrenia. Serotonin from the gut, from the intestines is key to avoid depressed mood states, which can be associated with schizophrenia, too. So, probiotics are important. “Nutritional psychiatry” has become a trend in recent years in the field; little by little psychiatrists are including diet as part of mental health. Sugars and sweeteners are a controversial area of interest. Cane sugar, table sugar, beet sugar is “sucrose” made up of glucose and fructose. Sucrose is broken down into those 2 sugars in the body. Our normal human brain cells use glucose almost exclusively for energy and normal functioning. The “high fructose corn syrup” has been outlawed in human foods in several European nations because it alters insulin metabolism, and causes more triglyceride and lipid formation by the liver, leading to metabolic syndrome. On Exercise: A very basic exercise is walking. It is commonly recommended to walk for at least 20 minutes as a time, working up a light sweat as a simple form of aerobic exercise. A nice family walk can help build rapport, help in bridge-building and lead to a meaningful and supportive home life or life in a board and care house or a group home. Yoga style stretching is very popular these days, videos, classes and groups are readily available in many towns and cities. Do exercises that you & your family enjoy doing. Harm reduction was addressed. Avoiding meats is recommended and any vegetarian restaurant will have balanced, healthy, tasty meals which are meat free & fish free. “Relative Risk,” is a phrase used by epidemiologists to describe an association between two things. There may not be a scientifically known mechanism for one thing causing the other, but there is an association. For example NIH, the National Institutes of Health, and the WHO, World Health Organization, and Harvard medical researchers show a clear and convincing association between eating meat and an increased colon cancer risk. There is one meat related disease mechanism known: the high fat content of meat and animal products increases certain hormone production in humans and thus increases the risk for breast and prostate cancer. Group that eat very little or no meats have much lower rates of cancer, than groups that routinely consume meats. The interview recapped and concluded with three recommendations: Enjoy regular meals together that contain plant based whole-foods, and by reducing or eliminating coffee, alcohol and nicotine consumption. Limit, reduce or eliminate sugars such as high fructose corn syrup and artificial sweeteners. Include moderate exercises, like walking, into the caregiving routine. These walks can be a time to build rapport and create meaningful lives with each other. Help your loved ones stay on their medications and to keep their doctors appointments.…
Karen Shein, at the time of the interview, is 3rd-year graduate student at San Diego State University in the Psychiatric Rehabilitation Counseling Program. She has an extensive history of supporting and educating caregivers of a loved one living with severe mental illness. She has worked with the local NAMI chapter, Jewish Family Service of San Diego, and has been a “Family to Family” program teacher, and she is a “Peer and Family Support specialist.” Her experience with other mental illnesses in addition to schizophrenia is quite valuable to our listeners. She related the personal history of her then college-age son with his first episode of severe Major Depressive Disorder with nihilistic and suicidal thinking. These self-destructive thoughts may also a part of the young adult’s early experience with schizophrenia. Getting into a closed-locked safe treatment setting can be traumatic, and we both hope to add our impact to change the mental health delivery system & associated components to be more compassionate in that situation. Karen then described her journey of self-education when she came across what is called “Motivational Interviewing” as a way to build rapport with a loved one living with mental illness. The hallmark is to put aside your own judgments and urges to correct delusional and grossly distorted thinking and accept the loved one’s thinking. At the same time acknowledging and empathizing with those thoughts and emotions while internally not agreeing to their validity. Simultaneously, one is trained to accept the loved one’s thoughts and not argue nor correct the very odd or frankly delusional material. This is quite a dance and a discipline for the caregiver. Of course, keeping things & people safe from harm is key. Dr. Ken Campos related part of his experience of 20 years in the closed locked acute hospital setting. There found that paying attention to and really intending to understand the beliefs and experiences of those living with what we call severe mental illness helped build trust and rapport with his patients. Ultimately, this stance, this way of being with the patients helped their healing process. Karen agreed that by accepting (but internally not completely agreeing with) her son’s personal narrative it helped both his acceptance & serenity and her relationship with him. It was a game-changer. Karen outlined some of the key featured of “Motivational Interviewing” which one can study using the link below. The legal privacy rules and laws for psychiatric hospital patients were discussed. In an earlier podcast, one local psychiatrist spoke about the acute psychiatric hospital stay and the value of the family making a phone call to the treatment team and giving the history of medications, observations, and symptoms related to their loved one. This was recommended when the treatment team is not allowed to acknowledge or admit that their loved one is even a current patient in the hospital. It is the team psychiatrist’s discretion to allow communication between the hospital staff and the family when it is deemed to be in the patient’s best interest. Karen spoke highly of the programs of NAMI, the National Alliance on Mental Illness, and encouraged listeners to explore their programs. Dr. Ken Campos invited listeners to his FaceBook support group, too.…
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HOPE: On the Other Side of the Door
Dr. Peterson’s background in rehabilitation counseling was reviewed and is thought to be particularly helpful to our listeners. She will further help the audience understand the ideal principles, values, and programs to support those living with a severe mental illness, such as schizophrenia. The history and the mission of the Psychiatric Rehabilitation Association (PRA) were reviewed. That group advocates for ethical and effective resiliency, wellness and recovery-oriented services and supports. A huge shared goal for the Schizophrenia Care Project, Dr. Peterson, and the PRA is to create an environment in which those living with schizophrenia may thrive and find purpose and meaning in their chosen communities. Although anybody can join, the PRA membership is generally made up of professionals in the field such as rehabilitation counselors, researchers, and educators, whereas other associations such as NAMI tend to include primarily individuals in recovery, their friends, family, and advocates The twelve principles of Psychiatric rehabilitation were reviewed. They include the concept that individuals with disabilities are the best experts in decision making about their life choices, treatment options, and medical decisions—not doctors or service providers. Doctors and other service providers have valuable skills, knowledge, and experience, but should be part of an integrated team which includes patients and caregivers. Treatment approaches should address all life areas such as housing, relationships, medical needs, nutrition, social life, paid or volunteer work, and participation in the community. Treatment is much more than finding a good medication and medication compliance. Recovery involves all life areas and addresses the whole individual. Another key idea is that people with disabilities do not need to be “fixed” – barriers to inclusion are in society. Those living with schizophrenia have the right to equal participation in every aspect of society. Vocational training is another principle for many, and work is therapeutic. Dr. Ken mentioned his past work at a California state hospital in which the Recovery model was used. Dr. Peterson reviewed the holistic approach to treatment as any plan with the overall view of all life areas such as housing, transportation, finances, relationships with loved ones, medical needs, nutrition, social life, paid or volunteer work, spirituality, and participation in the community. This is contained in the evidence-based Wellness Recovery Action Plan. The website link with the WRAP plan information also includes templates for a crisis plan and a post-crisis plan. Finally, Dr. Peterson concluded with the encouragement that “You are not alone!” You and your loved one who is living with mental illness are the best experts in your situation. There is support and a community for you with NAMI locally and online at Dr. Ken’s open FaceBook public group called “S-Project.”…
An introduction was made for the interview guest, a fellow mental health professional, George Bulahan, RN. He has worked extensively in psychiatric nursing at various care levels, at several hospitals and some clinics in Southern California, mostly in the San Diego area. He is currently a candidate for a Masters Degree in Nursing. Nurse George was able to talk about what NAMI calls "lived experience" with those living with severe mental illness. He agreed to talk about his own mother and your nephew on the podcast. There were some particular episodes mentioned about each and the ongoing balance his mother now has in her life. In his case, the early life experiences with psychosis in a close family member were confusing and difficult to understand. Later during his professional education, George was able to better understand the symptoms of psychosis and the particular features of schizophrenia. As both a professional staff caregiver and as a personal family-life caregiver George has a philosophy of being honest and transparent with the person living with schizophrenia. His example, to the listening audience, of how he successfully & meaningfully interact with a loved one is a valuable example. It is a useful technique to empathize with the emotional reactions that the loved one has to the delusions and hallucination symptoms while at the same time not fighting with them to convince the person that the symptoms are “false” perceptions. George also spoke of beginning conversations with people living with schizophrenia starting in view of that person, where they can see you, and approaching the other person in a calm and non-threatening, friendly manner. Next, in the interview, George spoke of a former life partner. This other man suffered from chronic psychosis, likely it was something in the schizophrenia spectrum. But in this case, there was a common complication of street drug usage. According to USA government reports almost 50% of people living with schizophrenia also have alcohol and substance use or dependence diagnosis. And the non-alcohol substance use, abuse, and dependence run about 27% in those living with schizophrenia. George tells of the complexities in his personal partner relationship; what he did to respect and acknowledge the delusions, while at the same time not arguing about the truth or fiction of those delusions. This is a form of compassionate support. Ultimately for personal self-care reasons, George had to leave that relationship. There had been some negative consequences for George such as depression and missing work. Then he made concerted efforts to transfer care of his partner to community mental health services. Subsequently, after some rehabilitation on the part of the partner, George now has a new healthy friendship with the fellow. In closing, George recommends that the caregiver has a strong foundation in self-care and self-love. It is important to ask for help from friends, professionals, and peer support groups, such at the S-Project group organized by Dr. Ken Campos.…
Dr. Ken Campos takes us on a journey towards understanding how the brain functions. He also explains how powerful antipsychotic medication is. He tells us the backstory about those meds and why he feels they are appropriate for treating schizophrenia.
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HOPE: On the Other Side of the Door
Today we look at yoga exercises including breathwork as a way to achieve and maintain balance for the caregiver of a loved one living with schizophrenia. Guru Simran discussed her early introduction and involvement with yoga practice. Next, the host reviewed his experience in the early years of the NIH National Center for Complementary and Integrative Health. Yoga was studied by NIH as a method of caring for caregivers of those with chronic illnesses. This leads to an explanation by Guru Simran about the history and meanings of yoga in Indian Hindu culture and religion. Her perspective is to keep yoga primarily as a spiritual practice. Traditionally, yoga has had reproducible effects on the practitioner, that is to say a scientific basis, and we discussed the set of exercises known as a kryia. In the past, the interview guest and the host have experienced centering exercises during the beginning of business seminars, and these chants, breath work and postures always result in noticeable benefits. Guru Simran tells how even a brief practice can be of benefit to listeners when faced with anxiety, fear or sadness when they are caring for a loved one living with schizophrenia. She leads the audience in a detailed particular “audience participation” breathing practice, one of the pranayama practices. This is for cleansing, for relaxing, energizing and mental clarity. It involves slow belly-breath in, then expanding the lungs, with a pause, followed by an exhalation starting with the top of the lungs and ending with the belly pushed inward toward the spine. The name in English for this 3-minute exercise is “Long Deep Breathing.” The mental component is to think of the following: 1) on the inhalation, breathe in strength, faith, peace; and 2) on the exhalation, breathe out weakness, fatigue, fear, tension, anger. The NIH / Center for Complementary and Integrative Health did a pilot study done in 2010 to benefit the caregivers of a family member living with dementia. Schizophrenia is, of course, different from dementia, but they are both chronic conditions affecting the thinking and behavior of the person. The caregivers practiced a particular Kirtan Kriya daily for 8 weeks and were compared to caregivers who did not. That small study showed a significant decrease in the mild depression and cognitive functioning problems in the caregivers who practiced this. Guru Simran discussed these types of exercises herself. There are hand movements in that system. The kirtan system gives meanings to the fingers of the hand as follows: Index finger corresponds to the planet Jupiter, representing wisdom; the middle finger corresponds to Saturn, representing patience; the ring finger corresponds to the Sun, representing vitality, the pinky finger is associated with planet Mercury, representing communication; and the thumb represents the personality, the ego. She recommends searching for and watching YouTube videos posted on Kirtan kryia. Another NIMH researcher in Bangalore, India, showed benefits of pranayama practices in stress, anxiety, depression and the symptoms associated insomnia. The onset of schizophrenia can and often does include the loss of former life directions, former dreams, and goals which can lead to a kind of grief and sadness. This is true for both the family member caregivers and for the person living with schizophrenia. His review showed sustained improvement in depressive symptoms at one and three months after an initial 3 month period of practicing the breath techniques daily. Guru Simran suggests finding for yourself a yoga teachers both locally and also to use her services and classes over the video internet software, such as Zoom. Finally, she recommends to start your day with a routine centering practice that resonates and makes sense to you and actually helps you as the caregiver. Self-nurturing is key to avoid burn-out, and to keep yourself nourished on a daily basis as a graceful, sensitive, compassionate caregiver.…
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HOPE: On the Other Side of the Door
The vision that Suzette, NAMI, and the Schizophrenia Care Project all share is the belief that all people living with mental illness, and all families touched by mental illness deserve to live supported, informed, productive and meaningful lives. Suzette reviewed the history of NAMI from it’s humble start in Madison, Wisconsin to the present. In a personal revelation, she spoke of her own son who has been affected with bipolar disorder; as a school age child had anxiety and depression. She reviewed programs and outreach, and the mission to support, educate and advocate on behalf of those affected by mental illness directly or in the biological family or family of choice. The local NAMI has several departments including support at a peer to peer level, and family support levels. We noted NAMI (National Alliance on Mental Illness) programs to support caregivers, especially the 12 week long class for caregivers of folks over age 18, and for those living with mental illness under 18 there is a “Basic” 6 week class program. They are “signature programs.” Additionally, Dr Ken moderates a Facebook group (S-Project) for caregivers. We defined the “Lived Experience” concept of the Schizophrenia Care Project and in Suzette & NAMI’s outreach, education, and support work. The “peer” is someone who has lived experience with mental illness. Staff at NAMI often have lived experience as well. This helps strengthen the culture of compassion and care for the services being provided. It should be noted that in Dr Ken Campos’ planned Schizophrenia Care Project Foundation residential homes this plan exists. It is his vision to instill and maintain such a culture of compassion among the staff -- from psychiatrist, to psychiatric technicians, to peers, to the cook and gardeners. Next, we discussed other programs such as the “NAMI – Walk” event in San Diego, which is a fundraiser walk and also a resource fair. We reviewed the National NAMI convention, and a state convention. Suzette told a success story of a young adult, transition age young man living with schizophrenia, and his initial down times, and subsequent growth into a thriving competent volunteer and activist. Acting with loving support is the solution. She emphasizes that hope and supportive people are always there.…
In this episode, Dr Ken Campos delivers his views on the history, the symptoms and features of schizophrenia and modern psychiatric diagnostic methods. Functional impairment over at least a six month period accompanied with psychosis is required to make a diagnosis of schizophrenia. His vision is living the best life possible. The clear and focused mission is for Dr Ken Campos to create a space, to create a clearing for balanced, healthful and respectful lives for those people living with schizophrenia and their caregivers. Development and growth in expanded compassionate consciousness is his motivation. The Schizophrenia Care Project is the beginning of this vision, along with this podcast. The online moderated support group for caregivers is a part of the project, designed to help caregivers embody the day to day attitudes and behaviors helpful to all concerned. The S-Project open group is a prelude to that moderated group. A not for profit Foundation (now in it’s inception) will fund and operate the care homes providing medication treatment along with integrative and complementary care in a truly loving setting with both specialty and peer support staff. http://drkencampos.com…
Toni Cole joins Dr. Ken to discuss her experiences and why that has made her so passionate about patients with schizophrenia and their caregivers. She gives some great advice for caregivers in this episode.
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HOPE: On the Other Side of the Door
Today Dr. Ken's guest is Royal Fraser. Royal ‘s early life experience exposed him to Chinese Medicine. His father was in the military and was sent to Korea, though Royal and his family couldn’t go, his father sent back stories, art and Zen Buddhist objects that spoke to Chinese Medicine and the riches of Korean culture. Later in New York City, he studied at the oldest massage school in the United States, the Swedish Institute. He specialized in Shiatsu, a massage technique based on the teachings of Chinese medicine. In NYC he worked as a massage therapist with Park Avenue movers and shakers. Later, Royal studied Chinese Medicine for four years @ the Pacific College of Oriental Medicine in New York & San Diego. This graduate level program included internships at a hospice, senior’s clinic and homeless clinic. Personally, I have had over 100 acupuncture treatments from Royal for my own low back and mid-back back issues, and for overall energy & health balance. This moved me to a new plateau of health, and completely stopped my back spasms which lasted about 3 days each, and had happened over a several years long period. His patients get the royal treatment. Royal, thanks for being here today. Royal says that Chinese Medicine focuses on helping people before they get sick. He says there are 8 aspects of Chinese Medicine. He focuses on acupuncture. Acupuncture is the use of very fine needles to stimulate points int he body that are useful in promoting someone's health. The Chinese mapped out a system of where to stimulate the body to cure certain issues. Royal speaks about chi. He explains the energy aspects of that and describes it similar to steam that comes off cooking rice. He says that steam is exactly the same as the concept of chi. Acupuncture can help a caregiver by helping their digestion which improves their nourishment. Royal says he speaks with the client at first to get a feeling about the things they need. Eating can be an issue for caregivers. Royal addresses guilt and shame. He says Chinese Medicine sees guilt and shame as a cycle we have to move through. He mentions there should be joy and a sense of willpower as well. He says these things are meant to happen on a daily cycle. Royal says that one thing that can be helpful to a caregiver is to get outside for at least 10 minutes each day. This will connect them back to nature and help relieve stress. Royal finds that caregivers appreciate being listened to. They tend to be the ones who have to do the listening, so having someone listen to them is very helpful for their mental state. He says that people become relaxed by their acupuncture treatment. They feel rested and refreshed after a treatment. Sometimes grief comes out as well. The discussion turns to how Royal can help people with anger issues related to their caregiver role. He says acupuncture can help get the anger out.…
Today Dr. Ken Campos is joined by Dr. Jim Colbert. Dr. Colbert is a seasoned clinical psychologist with a small private practice in Southern California. He trained at UCLA and lived and worked in the Los Angeles area many years. Dr Colbert works with families as well. His area of special expertise is with both younger and older adults with anxiety and depression and the area of memory assessment & enhancement. His therapy emphasizes the personal life journey and restoring the locus of control to the individual. Please see his website for more information, www.jamesncolbertphd.com. Dr. Colbert has two daughters who have schizophrenia. He worked for the Los Angeles Probation Department for a time and then private practice. He has been married 3 times. He became disabledat the age of 28. That ended his first marriage. Dr. Colbert's first daughter had her first major breakdown in her early 20's. She responded well to recommendations he had. She was able to function well with medication during the first period. At one point she attempted suicide. He recounts the aftermath of that suicide attempt and explains that at the end of her life she died from cancer. This daughter became the leader of schizophrenic's anonymous and began advocating for people to take their medicine. Dr. Colbert read to her nightly towards the end of her life. Dr. Colbert speaks of his second daughter with schizophrenia. She also had thyroid problems. She was not one to take the medication. She used to work for the Los Angeles Times and developed the idea that there was a conspiracy with the Los Angeles Times ownership and that she was part of it. A friend called him and let him know of the difficulty hsi daughter was experiencing. She didn't resist him being involved with the care, but she resisted almost all forms of treatment. She had a number of breakdowns where she would have hallucinations. At some point she wrote a threatening letter to President Bill Clinton. She was interviewed by the Secret Service. Dr. Ken recounts when the US Secret Service came to his facility for a talk. There are a couple of hundred people in the United States who have a severe mental illness and have made threats against the US President. The agents said that when the President switches the new focus goes to the new President. It isn't the man himself that causes the threats. Dr. Colbert says he tried to get his second daughter to go to a medical doctor. It was during one of those visitis they discovered a major thyroid deficiency. Dr. Colbert recalls thinking that maybe with the proper thyroid medication, his daughter might be back to normal. She refused the medication. He decided to use every power of his being to get her to take that medication. Dr. Ken discusses how common this situation Dr. Colbert described is. They've come to believe some people have this as a feature of schizophrenia. Dr. Colbert describes how he helped his daughter find her own place, but after she was settled in, she decided to have nothing to do with him. This is also very common behavior in schizophrenic patients. He discusses losing that connection with his adult child. He says parents strongly want to be with them because they still feel that parent-child relationship. At the same time, there was slight relef because her denial of time with him allowed him to avoid dealing with her issues. He describes how he spent two years in psychogtherapy as a patient dealing with his feelings about this. Dr. Ken discusses how developing self-confidence through therapy is very helpful. Support groups are very important as well. Dr. Colbert describes the experience as a parent as overwhelming. His own experiences gave him a connection to other parents going through the same thing.…
Today's guest is Kim Walker. Kim Walker is a Certified Success & Passion Coach and also a Business Hypnotist. She has a Masters in Biology and 27 years’ experience in the healing arts. As both a personal and business Hypnotist Kim uses professionally guided hypnosis to help you achieve your goals in a few short sessions. She has helped thousands of people just like you discover the hidden components of thought and action that are holding you back from success in you business and personal life. Kim recounts a time when she went through a very bad rain storm and had to help her sister, who lived on the second floor and her entire place was flooded. She says that she had to call on family, friends and Facebook friends to get her sister to another family member. Dr. Ken says in a situation like Kim described, being clear is the key and realizing you don't have to go at it alone. Kim shares the story of her niece. She says that when her niece would get off her medication, she would withdraw. Her niece became homeless and was subject to an awful environment. She was victimized on the street in various ways. Dr. Ken says that for 15 years he worked in a county psychiatric hospital in California and 1/3 of his clientelle were the homeless. Kim says they were able to get her niece into treatment and believes her niece has just forgotten the trauma by blocking it. Dr. Ken says that people with schizophrenia must realize it doesn't affect their entire life and that portions of their life are free of that diagnosis. Kim again discusses her sister and how she gave birth and the stress of that caused her to run off again. The new baby was refusing to eat from a bottle. Kim happened to have a baby around the same time, so she was enlisted to breastfeed her niece. Kim says that communication was the key. Her husband was extremely supportive. She says you need healthy boundaries to help yourself. These boundaries change over time and that's OK. Kim says that a loving and supportive attitude is essential. Many with schizophrenia need the love and support. Kim does whatever she can to return her sister's calls as soon as possible. Kim discusses hypnosis. She has used it for over 30 years. She says you can live a more joyful, balanced and healthy life through hypnosis. She says that hypnosis is a learning process. She says you won't do anything that will harm you. Dr. Ken says hypnosis is a form of learning at a very deep level. Kim says that caregivers should educate themselves. They need to have healthy boundaries. They should speak with a counselor to help them by being a sounding board. (www.BusinessHypnotist.com)…
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HOPE: On the Other Side of the Door
Dr. Ken introduces Dr. Marcella Wilson. Dr. Wilson is the first woman and the youngest person ever to be selected as the Chair of the Department of Psychiatry of a local hostpital. She was also the first woman president of the San Diego Psychiatric Society. Dr. Wilson explains what a first break means. She says it is referred to as a psychotic break. It is generally the first time a patient is recognized as having a problem. Symptoms have usually already been present. It gets to the point the symptoms are more severe and family and/or friends recognize they need professional help. She discusses delusions, which are false ideas that could be bizarre or grandiose. Hallucinations are another symptom. These are false perceptions. When presented, the patient may talk in an unusual way. They might even make up words. One issue people see prior to the break is the person will have had a little bit of a downward spiral regarding hygene, isolation and behaviors not typical of them. Dr. Wilson says that the San Diego County Mental Health Hospital serviced uninsured people. Now it serves the underinsured or people with Medi-Cal. It serves as a catch all hospital for those who can't pay or cannot be in a private hospital. Dr. Ken worked at that same hospital for 15 years. The county mental health hospital uses a team approach. This comprehensive team is dedicated to helping the patient. They try to have family meetings to gather and exchange information. Discharge planning was always a huge proiroty ofr discharging the patient. Who will help them and at what level must be decided. They try to integrate the caregivers as much as possible. Dr. Ken brings up the 5150 detention. He says it ties into the stigma. Dr. Wilson comments on the legal aspects about 5150. She says it is a Health and Welfare Code. It is just a 72 hour hold for the 5150. At the 72 hour mark something else must happen. The initial 5150 can only be instantiated by peace officers and doctors within an institution. There are 3 reasons to detain someone. They are a threat to themselves, a threat to others or they are gravely disabled, meaning they cannot appropriately take care of themselves due to mental illness. Dr. Wilson explains that if 72 hours isn't enough, they can initiate a Riese Hearing, which means the court is involved. The court comes to the hospital and the patients have a patient advocate. The doctor presents the case for why the person should be on medication If they are a threat to themselves or others or they are gravely disabled, the hearing will determine if the patient needs medication or not. If the patient needs to stay longer, but refuses, they initiate a 5250, which is a 14 day hold. The court comes to the hospital to determine if the 14 day hold is proper. Dr.Wilson says that some people become so identified with being a 5150 that perhaps it is a delusion. Paranoid delusions are about the legal system--the FBI or the police. Dr. Ken says that even the extended period isn't enough. Dr. Wilson discusses permanent conservatorship. She says a 5270 is a 30 day hold. It can be applied as a temporary conservatorship. The same process applies, with a representative of the court coming to the hospital for a hearing and the patient can defend themselves. She mentions a 5300 which is a certification of dangerousness to others. Dr. Wilson discusses how they get a conservatorship. She explains that they are based upon grave disability. It is usually someone who has come in and out of the hospital many times. First you get a temporary conservatorship which lasts 30 days. Next you get the permanent conservatorship which is for one year and can be renewed. Dr. Ken points out there is a mild, moderate or severe level of schizophrenia. Dr. Wilson says that caregivers can gain a better understanding of what is really going on. She says it can be scary to the patient and the family members. By having a better understanding, the outcome is better. Questions should be asked fo the doctor about the plan. Soemone on the team can tell the family members about the short term plan. The presence of the family members is very important. Consent is a huge issue. As long as the patient allows a family member to be in the room, that is the same as them giving consent. Dr. Wilson has some encouragement for those family members livign with members who have schizophrenia. She says that sticking with them an da good doctor, there is definitely heope. It isn't all about medication (which is important), but you should find someone with a therapeutic touch. Therapy is just as important as medication. http://www.marcellawilsonmd.com…
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HOPE: On the Other Side of the Door
In this episode of HOPE on the Other Side, Dr. Ken welcomes Dr. Jeffrey Chao for a discussion about how families can cope with schizophrenia in a family member. They enter into a good discussion about the approaches used to ease the minds of family members. http://drkencampos.com
Dr. Ken Campos interviews T. Collins Logan about Integral Lifework, an approach Mr. Logan uses with his clients who are caregivers. The discussion centers on how to care for the caregiver. It explains how the caregiver can take care of themselves and improve their own self-worth. Mr. Logan has written several books. http://drkencampos.com…
Heather Ann Havenwood interviews Dr. Ken Campos about his new podcast, HOPE on the Other Side of the Door. Dr. Ken explains why he wanted to start this podcast. He explains how his past experiences shaped this podcast into what it is today. He explains that he wants to create a support community for caregivers of schizophrenics. http://drkencampos.com…
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