The Lucky Few podcast

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The Southwest’s Wildest Outdoor Art: From Lightning Fields to Sun Tunnels 30:55

vor 4 Tagen30:55

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30:55

A secret field that summons lightning. A massive spiral that disappears into a salt lake. A celestial observatory carved into a volcano. Meet the wild—and sometimes explosive—world of land art, where artists craft masterpieces with dynamite and bulldozers. In our Season 2 premiere, guest Dylan Thuras, cofounder of Atlas Obscura, takes us off road and into the minds of the artists who literally reshaped parts of the Southwest. These works aren’t meant to be easy to reach—or to explain—but they just might change how you see the world. Land art you’ll visit in this episode: - Double Negative and City by Michael Heizer (Garden Valley, Nevada) - Spiral Jetty by Robert Smithson (Great Salt Lake, Utah) - Sun Tunnels by Nancy Holt (Great Basin Desert, Utah) - Lightning Field by Walter De Maria (Catron County, New Mexico) - Roden Crater by James Turrell (Painted Desert, Arizona) Via Podcast is a production of AAA Mountain West Group.…

The Lucky Few

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Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.

332 Episoden

#Kids And Families #Lucky

The Lucky Few

updated vor 18 Stunden

Serie-Home•Feed•Unterstütze den Herausgeber

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.

332 Episoden

#Kids And Families #Lucky

Alle Folgen

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298. What’s going on with the Department of Education? (Part 2 w/Ashley Barlow) 47:25

vor 18 hours47:25

47:25

Overwhelmed by all the news lately? Us too. That’s why Ashley Barlow (@thecollaborativeiep) is back on the show today to breakdown all of the changes to the Department of Education and the impact on students with disabilities. Here’s what we’re discussing today: Budget cuts and the impact on early learning for students with disabilities (no more Head Start program in 2026?!) Pros and cons of school choice and vouchers (What does “welfare for the rich” mean?) Action steps to make sure your child’s educational needs are met We know that many of these changes have not happened yet, but the current political attitude towards disability has us a little worried. If you’re feeling the same way, stay informed and know that we’re all in this together. SHOW NOTES Follow Ashley at @thecollaborativeiep and find her website here. SHOUT OUT Learn more about The College of Adaptive Arts here and follow them on instagram! SPONSORS Learn more about Jack’s Basket. Learn more about Enable Special Needs Planning.…

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297. Extracurricular Activities and Inclusion: How to Make it Work For Our Kids with DS 41:35

vor 8 Tagen41:35

41:35

Picture this: your child with Down syndrome tells you they want to play a sport. You sign them up for the local team, drop them off at practice, and pick them up without any difficulties. Everything goes smoothly… But that’s not always reality is it? Lets break down the complexities of extracurricular activities today: How to ask for accommodations that promote safety, respect, and inclusion Separate programs designed for people with disabilities.. and what to do when they’re not as inclusive as they seem How to manage our own expectations of our children and their activities Here’s what we’ve learned: the attitude of the people in charge really matters. And if we can find programs with inclusive-minded leaders who understand our kids with DS, then that’s where we need to be. Join us today as we dive into our personal experiences (both positive and negative) with musical theater, gymnastics, and swim. And don’t forget that any program is lucky to have your child! SPONSORS Learn more about Jack’s Basket . Learn more about Enable Special Needs Planning . JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! HEATHER’S NEW BOOK Pre-order Heather’s newest children’s book: I Like You So Much! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!…

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296. Planes, Trains & Presuming Competence 35:54

vor 15 Tagen35:54

35:54

The Avises are back from an 18-day European vacation with tips, tricks, and travel stories for all of us. So Heather and Josh are here today to answer all the questions: How do you “lean in” to surprising (and sometimes frustrating!) moments with your kids? What to do when your family vacation doesn’t look like other families? What are your major tips for traveling with kids/teens who have Down syndrome? There are so many travel resources out there.. disability discounts, wheelchairs, free transportation, + more! We’re excited to share with you just how we used them. So take some notes then start planning your next trip! -- SHOW NOTES SHOUT OUT: Check out Cafe Joyeux on instagram and their website Watch 47 , a short film produced by Cafe Joyeux SPONSORS Learn more about Jack’s Basket . Learn more about Enable Special Needs Planning . JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!…

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295. How can I help my child with a disability sleep better? 41:27

vor 22 Tagen41:27

41:27

How many nights per week would you say your child (with or without a diagnosis) sleeps well? We asked our audience and discovered that sleep is a struggle for a LOT of us! So if you’re feeling like you’ve already tried all the online hacks but your child still wakes you up at the same time each night, this episode might have a new tip for you! Here’s what we’re covering today: What’s the biggest sleep challenge for our kids with Down syndrome? And our kids with a dual diagnosis of DS and autism? Micha’s sleep journey with her son Ace... Does a gluten-free, dairy-free, additive-free diet actually work? What medications have or have not been effective? What is a sensory diet and does it really help? How has an ADHD diagnosis affected Ace and his sleep? Audience input! We’ve crowdsourced the best tips from all of you! Learn how other parents have changed their children's rooms and bedtime routines to promote better sleep. But before we dive into sleep, we’re chatting briefly about the change from Autism Awareness Month to Autism Acceptance Month + the importance of centering Autistic voices in this conversation. For now, wherever you’re at in your sleep journey, we hope this episode helps! You’re not alone out there! -- SHOW NOTES SHOUT OUT: Follow Nicole Adler ( @nicole_ for_ love ), a speaker and advocate for the disability and LGBTQ communities. SPONSORS Learn more about Jack’s Basket . Learn more about Enable Special Needs Planning . JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!…

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294. Why Down Syndrome Isn't Something to "Cure" 33:20

vor 29 Tagen33:20

33:20

When we saw this headline, “CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment,” we knew we had to discuss this article together. So that’s what we’re doing today. Here’s what we’re covering in this episode: The ethics of gene editing - What about other conditions with serious life-threatening effects? Why do some people assume that we need to “cure” Down syndrome? What would we do to alleviate some of the medical challenges in the DS community? The problem with not including disabled people in this conversation We are really digging deep today! And we invite you to read the article ( linked here ) and join us for this important conversation. -- SHOW NOTES Read CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment Keep this convo going with these past episodes: 161. Let’s Talk About Abortion & Disability ; 117. Dignity Beyond Accomplishment ; 99. The Last Children of Down Syndrome SHOUT OUT: Follow @amyjuliabecker for thoughtful discussions on hard topics in the DS community. SPONSORS Learn more about Jack’s Basket . Learn more about Enable Special Needs Planning . JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!…

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293. Potty Training with a Dual Diagnosis 38:20

vor 5 weeks38:20

38:20

Raise your hand if the thought (or maybe even the memory) of potty training gives you anxiety! This parenting milestone sure brings up a lot of feelings, especially for those of us in the disability community. Here’s what we’re chatting about today: Micha’s potty training journey (including some behind-the-scenes voice notes and training tips!) The impact of a dual diagnosis (Down syndrome and autism) on potty training Dealing with internalized ableism PLUS: WHY do we actually want certain things for our child? Is it for their safety or for societal expectations? And also, happy Autism Acceptance Month! Lets celebrate that and remember: learning new things can take a long time. And that’s okay. -- SHOW NOTES Visit successfulpottytraining.net to learn more about Ashley Hickey and her potty training methods Listen to ep 62. Micha & Ace’s Dual Diagnosis Journey SHOUT OUT: Follow @learnplaythrive on instagram for neurodiversity affirming therapy strategies! SPONSORS Learn more about Jack’s Basket . Learn more about Enable Special Needs Planning . JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!…

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292. What's going on with the Department of Education? (w/guest host Ashley Barlow) 36:34

vor 6 weeks36:34

36:34

If you’ve watched the news recently, you know that there are some HUGE changes happening in our government, especially with the Department of Education. We’re breaking it all down today with our guest host, Ashley Barlow! She’s a mother to a son with Down syndrome, special education attorney advocate, IEP expert, former teacher, current speaker and podcaster. We are so grateful she’s here to cover all these topics: Why did the administration take action so quickly? What exactly is the HR 899 bill and how will it affect students with disabilities? If the DOE gets dismantled and then redistributed, which other departments will be in control? What can parents do right now to protect their children in schools? There’s a lot to unpack here, friends! Regardless of your political party, we hope you join us for this conversation so we can stand together in agreeance on what our kids deserve in their schools. Let’s dive in. -- SHOW NOTES Follow Ashley Barlow on instagram and visit her website ! Shout out to Massachusetts Advocates for Children for the imporant work they're doing! Check out their website HERE . SPONSORS Learn more about Jack’s Basket . Learn more about Enable Special Needs Planning . JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!…

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291. New Season, Same Us: Life Updates & What’s Coming! 43:30

vor 7 weeks43:30

43:30

Here we are with a NEW season of The Lucky Few Podcast! Join us for this first episode back for some big life updates! From Mercedes: mother-daughter bonding with Sunny, braces, medical things From Micha: potty training for Ace, communication device debates, new therapies From Heather: her mother’s health, extracurriculars.. dances, musical theater, basketball From the pod: BONUS episodes that you can access as a member of The Lucky Crew! Join THE LUCKY CREW for $4.99 a month for bonus episodes and MORE. Participate in the NDSS Racing for 3.21 challenge on World Down Syndrome Day. Sign up to participate from where ever you live, HERE . Some things haven’t changed though.. you’ll see that we still don’t really know what year of the podcast this is and we still think there’s room to grow in the education system (shocker!). But get excited friends! Because this season will be full of important topics + a GUEST HOST.. Ashley Barlow, a fellow lucky mama, podcaster, and IEP expert. SHOW NOTES Join THE LUCKY CREW for $4.99 a month for bonus episodes and MORE. Participate in the NDSS Racing for 3.21 challenge on World Down Syndrome Day. Sign up to participate from where ever you live, HERE . JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! HEATHER’S NEW BOOK Pre-order Heather’s newest children’s book: I Like You So Much!…

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Throwback: Is Inclusion A Privilege? 55:49

vor 15 weeks55:49

55:49

UPDATE for 2025: First, we want to say how much this podcast community means to us. Over the past seven years, we’ve released 290 episodes, reaching millions of listeners worldwide. You’ve been with us through laughter, tears, challenges, growth, and friendships. This podcast exists because of you, and we’re deeply grateful for your support. To keep The Lucky Few Podcast thriving, we’ll be making some changes early this year. While we focus on restructuring and exploring new ideas, we invite you to revisit past episodes or relisten to your favorites. Stay up-to-date by following us on social media ⁠@theluckyfewpod.⁠ We’re excited for what’s ahead! Until then, know we’re cheering you on and love you so much. ... Friends, today we’re diving deep into the heart of our favorite topic: inclusion! We chat about the barriers preventing true inclusion and we're challenging societal norms and asking the important questions about what defines human worth. What kind of person gets to be celebrated? What kind of person with Down syndrome gets to be celebrated? We explore the buzzword status of “inclusion,” the role of privilege in accessing support and services, and so much more. As we navigate this journey, we recognize the honor and burden of advocating for a more inclusive world. Progress in inclusion is happening, but are we truly championing the essence of every individual? Is the current system promoting equal access and opportunities? We’re asking all the questions, you don’t want to miss this thought-provoking episode! --- SHOW NOTES ⁠Learn more about regional assembly member Mar Galcerán’s!⁠ Other episodes to check out: ⁠17. Self Advocacy - Down Syndrome in DC with Kayla McKeon!⁠ ⁠28. Owning Your Influence In ALL Your Spaces!⁠ ⁠40. Back to School & All Things Education, Inclusion, & Down Syndrome⁠ ⁠58. A Conversation About Race & Down Syndrome w/Mercedes Lara & Kelli Caughman⁠ ⁠64. Building Bridges Towards Inclusion w/Barbara Butler⁠ ⁠67. Unpacking Privilege & Understanding Intersectionality w/Jalondra Davis⁠ ⁠85. Is Inclusion Always The Best Option?⁠ ⁠92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing⁠ ⁠101. Jalondra Davis on Race, Disability, & Advocacy⁠ ⁠126. Creating Opportunities & Changing Perspectives Through Inclusive Employment ft. Wendy Lacey (Cornerstone Montclair)⁠ ⁠128. What To Expect From Inclusive Settings⁠ ⁠148. Diversity in the Down Syndrome Community⁠ ⁠149. The Only Black Mama In The Room - ft. Ashley Dirks (mother/advocate)⁠ ⁠172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani⁠ ⁠195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry)⁠ ⁠197. Exposing The Roots (Racism, Ableism, Microagressions, + More)⁠ ⁠198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools⁠ ⁠203. Beyond Checking A Box⁠ ⁠204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward⁠ ⁠205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko⁠ ⁠208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)⁠ ⁠218. Creating Inclusion For All Learners (w/Tim Villegas) ⁠ ⁠223. Included, Seen, & Heard: The Impact of Successful Inclusion⁠ DISCOUNT CODE Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information! LET’S CHAT Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.…

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Throwback: Everything No One Tells You About Parenting A Disabled Child (w/Kelley Coleman) 57:53

vor 17 weeks57:53

57:53

UPDATE for 2025: First, we want to say how much this podcast community means to us. Over the past seven years, we’ve released 290 episodes, reaching millions of listeners worldwide. You’ve been with us through laughter, tears, challenges, growth, and friendships. This podcast exists because of you, and we’re deeply grateful for your support. To keep The Lucky Few Podcast thriving, we’ll be making some changes early this year. While we focus on restructuring and exploring new ideas, we invite you to revisit past episodes or relisten to your favorites. Stay up-to-date by following us on social media @theluckyfewpod. We’re excited for what’s ahead! Until then, know we’re cheering you on and love you so much. ... Throwback: Everything No One Tells You About Parenting A Disabled Child (w/Kelley Coleman) We’re so excited to welcome feature film executive turned author and disability advocate, Kelley Coleman to the show! Her book Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Support releases TODAY!! Friends, this book is like gold, it provides the kind of support and confidence we all need to navigate and understand the complex systems, services, and supports no matter what diagnosis our kids have. It’s a resource we’ll be looking to for years to come, providing us with helpful questions, checklists, and ways to access services based on your child's individual needs. We celebrate finding friendship and community throughout the disability community, and Kelley shares how the Down syndrome community has embraced her and her son. She even shares how disability rights activist Judy Heumann shared her enthusiasm for a resource like Kelley’s book and emphasized the importance of sharing stories as self-advocates and nondisabled advocates in the disability space. This is a book and conversation we’re so grateful for, this is an episode you don’t want to miss! --- SHOW NOTES Order Kelley’s new book ⁠ Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Support ⁠ To learn more, visit ⁠ https://www.kelleycoleman.com/ ⁠ Follow Kelley on ⁠ Instagram ⁠ and ⁠ Facebook ⁠ ⁠Learn more about Judy Heumann’s legacy⁠ THANK YOU TO OUR SPONSOR: Thank you, ⁠ Enable SNP⁠ for sponsoring this episode! ⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠ ⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠ HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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290: Redefining Resolutions For Growth, Not Perfection (w/Amy Julia & Penny Becker) 54:43

vor 18 weeks54:43

54:43

Happy New Year friends! Join us as we welcome back Amy Julia Becker and her daughter Penny for an inspiring conversation on redefining resolutions for growth instead of perfection. We’re talking about the power of celebrating small wins, how caregivers and families can support loved ones with Down syndrome in setting and achieving goals, and the transformative lessons we’ve learned from goal-setting with our children. Penny also offers her perspective on staying motivated, what success looks like to her, and what she hopes to accomplish in the year ahead. Whether you’re setting goals for yourself or alongside your loved one with Down syndrome, this conversation will leave you ready to embrace every step of the journey. This is an episode you don’t want to miss! SHOW NOTES Instagram: @amyjuliabecker Facebook: @amyjuliabeckerwriter YouTube Channel Threads: @amyjuliabecker X: @amyjuliabecker amyjuliabecker.com Our Previous Episodes with Amy Julia: 247. The Transition To Adulthood: Fostering Independence, Dignity Of Risk, & Supporting Decision-Making (w/ Amy Julia Becker) 158. Faith, Healing, & Disability, ft. Amy Julia Becker (Mother/Autho 26. Owning Your Influence By Using Your Words with Amy Julia Beck er Thank you, NDSS for sponsoring this episode! Register today for the 2025 Down Syndrome Advocacy Conference! Early bird registration is now open! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information!…

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289. It's time for Good News! The Holiday Edition. 51:08

vor 19 weeks51:08

51:08

It’s Christmas Eve, and whether you’re wrapping up last-minute gifts, squeezing in a classic Christmas movie, or running errands around town, we’re thrilled to be keeping you company! Today, we’re diving into something extra special to celebrate the season—a deeper look at the good news in our lives. In the Christmas tradition, there’s a powerful moment when the angel declares the arrival of Jesus as good news. Inspired by this, we’re dedicating today’s episode to celebrating all kinds of good news: the joy of Christmas, the incredible kids with Down syndrome who brighten our lives, and the beauty of shifting narratives. So, grab a cup of cocoa, take a deep breath, and join us as we spread some cheer and shout some worth. We’re so glad you’re here. SHOW NOTES Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. ⁠ Become an essential part of The Lucky Few movement today! ⁠ DISCOUNT CODE Friends, grab your narrative shifting gear over on ⁠ The Lucky Few Merch Shop⁠ and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, ⁠ Enable SNP⁠ for sponsoring this episode! ⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠ ⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠ LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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288 A Christmas Movie for all: with Mia Armstrong and Julia Barnett 32:01

vor 20 weeks32:01

32:01

Today, we’re bringing you some Holiday cheer as we head to the fictional and festive town of New Hope, TX. I have the honor and thrill of speaking with Julia Barnett, the writer and director of the new holiday movie A Christmas in New Hope, and Mia Armstrong, one of the lead actors who plays Charlie, the daughter of a single mom fighting to save her home before Christmas. Mia, who has Down syndrome, shines in a role where her diagnosis takes a back seat, showcasing her as a fully realized character. Join us as we dive into the inspiration behind the movie, Mia’s journey to the role, and the powerful representation of Down syndrome in storytelling. Watch this film on Apple TV , Amazon , Google Play , Spectrum , Fandango , Roku and Tubi - - - - - - SHOW NOTES Learn more about the movie here Watch the trailer here Follow Mia on Instagram Follow Julia on Instagram Follow A Christmas in New Hop on Instagram and Facebook JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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287. Embracing “Good Enough” Holidays 53:41

vor 21 weeks53:41

53:41

How do you handle the grief that comes with unmet holiday expectations? As we dive into the holiday season, many of us wrestle with the dream of a “perfect” celebration that doesn’t match reality. In this episode, we’re having an honest conversation about releasing those high expectations, navigating the challenges and grief that come with letting go of the idealized holiday image, and discovering joy in what is rather than what could have been. From coping with unplanned moments to redefining traditions and setting boundaries with family, we’re exploring how to create a meaningful, authentic holiday season that works for you. Don’t miss this heartfelt discussion! - - - - - - SHOW NOTES 236. Making Space For Grief (w/Claire Bidwell Smith) 235. All The “Big Feelings” 192. Tis' the Season! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP Thank you, NDSS for sponsoring this episode! Register today for the 2025 Down Syndrome Advocacy Conference! Early bird registration is now open! LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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286. Beyond The Gift: Celebrating Non-Profits This Giving Tuesday 43:06

vor 22 weeks43:06

43:06

Today is Giving Tuesday! This year we’ve decided to switch up our traditional gift guide and bring you some of our favorite non-profit organizations doing incredible things for our community. In the spirit of Giving Tuesday, we encourage you to consider supporting their work with your time, resources, or donations. From advocacy to education to direct support, these organizations are transforming lives, and Giving Tuesday is a powerful opportunity to join them in making a lasting change. We hope you enjoy hearing from Karmel Garcia from Zoe’s Toolbox, Stephanie Thompson from the National Down Syndrome Adoption Network, and Crystal Lotterberry from Black Down Syndrome Association. Every bit of support counts, and today is the perfect day to give back meaningfully. SHOW NOTES Zoe’s Toolbox: Learn more about Zoe’s Toolbox Donate to Zoe’s Toolbox Follow Zoe’s Toolbox on Instagram and Facebook National Down Syndrome Adoption Network: Learn more about the National Down Syndrome Adoption Network Follow NDSAN on Instagram and Facebook Listen to our previous episode with NDSAN: 45. Adoption & Down Syndrome w/Stephanie Thompson from the NDSAN Black Down Syndrome Association: Learn more about Black Down Syndrome Association Follow Black Down Syndrome Association (BDSA) on Instagram and Facebook Join the Black Down Syndrome Association Facebook Family Group Listen to our previous episodes with BDSA: 195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry) 256. Celebrating Motherhood, Advocacy, & Community (w/Black Down Syndrome Association) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

The Lucky Few

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BONUS. Dreaming Big and Showing Up From The NDSS Adult Summit 49:21

vor 23 weeks49:21

49:21

That’s right friends, we’ve got a BONUS episode for you this week! Today, we’re bringing you our closing keynote from the NDSS Adult Summit, we’re sharing our takeaways from the weekend, practical tips, and tools for building a future that people with Down syndrome deserve. From dreaming about employment and supporting Down syndrome-owned businesses to creating transition plans and embracing independence, this episode is packed with inspiration and actionable steps. You’ll also hear from incredible advocates sharing their hopes and dreams for the next generation of people with Down syndrome. This is your reminder that your voice, your story, and your advocacy matter! - - - - SHOW NOTES Links from our Favorite Tips & Tools from the Adult Summit! Dream about employment. Sit down with a loved one and write down your future dreams and goals for employment. NDSS has resources and templates for future planning, entrepreneurship, starting a business with your family, and more! Check out their website to get started! Support businesses owned and run by people with Down syndrome. Follow them on social media, sign up for their newsletter, purchase their products, and share with family and friends. Friends, this holiday season, take a look at the NDSS interactive holiday gift guide to help you find businesses to support! Apply for an ABLE account (tax advantaged saving account for individuals with disabilities) Sign up to be part of research. Stay up to date with research. Did you know NDSS even has a research studies page on their website where you can search by age and sign up for their newsletter where they send out new research opportunities from time to time! Look into the Alzheimer’s research , if you are 35 or older talk to your doctor about Alzheimer’s disease and prevention. NDSS resources and Adult Down Syndrome center website has a resource gallery with videos and worksheets on dating, puberty, social boundaries, and more. Make a transition plan. Contact your department of rehabilitation. Pick up transition guide from NDSS table or download online . Take a step towards independence. Is there an area of life you dream of having more independence? Living alone? Making your lunch? Navigating your community? Initiating social fun with friends? Sit down with your loved ones and make a plan for the next steps to meeting that goal. Sign up for the NDSS Advocacy conference. April 28-30. Watch the new NDSS PSA Town 21 Listen to EP 284 Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream? Thank you to Camilynne Photography for capturing so many of our Adult Summit memories! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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285. The World We Deserve: LIVE From The NDSS Adult Summit 1:06:27

vor 23 weeks1:06:27

1:06:27

Friends, we had an epic time at the National Down Syndrome Adult Summit in Costa Mesa, CA! It’s a weekend of connection and educational sessions on a variety of topics that address adulthood and aging for the disability community. We had the honor of helping to launch the NDSS Town 21 PSA and spoke with Town 21 news anchor Jessica Kishner about her role in the video, her passion for music, and her dreams. We also got the chance to talk with NDSS President Kandi Pickard and the creator of the NDSS Adult Summit, Jadene Ransdell, about the importance of dreaming big and creating opportunities. Together, we reflected on how we can take the energy and education from this weekend to better support adults with Down syndrome. This episode captures the inspiration, hope, and energy of the weekend and we’re so excited to share it with all of you! This is an episode (and weekend) you don’t want to miss! - - - - SHOW NOTES Watch the new NDSS PSA Town 21 Our episode with BTS of Town 21 on EP 284 Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream? Our episode with Kandi Pickard celebrating their 45th anniversary: 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Our episode with Alex Bolden (who is in the closing scene): 277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson) Thank you to Camilynne Photography for capturing so many of our Adult Summit memories! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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284. Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream? 1:17:02

vor 24 weeks1:17:02

1:17:02

We’ve talked about impactful PSAs that the Down syndrome community has put out over the years. Today we’re talking about the most recent PSA from our friends over at the National Down Syndrome Society, if you haven’t seen it already follow the link in our show notes and go watch their powerful, important, and impactful message and listen to some behind-the-scenes interviews on this weeks episode! We’re chatting with the president of NDSS Kandi Pickard, an amazing couple Jeremy and Audrey featured in the wedding scene, and Jamie Weitzman whose kiddos Hannah and Jedidiah were featured in the crowd at the wedding! We’re talking about every little detail, why it matters, and what we can do to help create this world that we all dream of for people with Down syndrome and that people with Down syndrome and disabilities deserve. This is an episode you don’t want to miss! - - - - - - SHOW NOTES Watch the new NDSS PSA Town 21 NDSS 2018 PSA Bridging the Gap Watch the NDSS 40th Anniversary PSA Check out Jeremy & Audrey’s Non-Profit Down Syndrome Rocks Our episode with Kandi Pickard celebrating their 45th anniversary: 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Our episode with Alex Bolden (who is in the closing scene): 277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson) Our episode with Matthew & Lucia: 244. Love, Advocacy, & A Viral Proposal (w/Matthew Schwab & Lucia Romano) Our episode with Craig & Heather: 231. Love, Marriage, & Eqaulity w/ Craig & Heather (w/Moms Lisa & Pat) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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283. Navigating Tube Feeding With Down Syndrome (w/Dr. Lauren Fiechtner) 36:40

vor 25 weeks36:40

36:40

Nutrition is key to a child's development, but for some children with Down syndrome, feeding challenges make it difficult to get the nutrition they need. That’s where tube feeding comes in. Today, we’re chatting with Dr. Lauren Fiechtner, Director of Nutrition at Mass General for Children, to talk about the different types of feeding tubes, why they are sometimes necessary, and the unique feeding challenges that children with Down syndrome may face. We’re chatting about when tube feeding is typically used, the emotional and physical challenges parents may experience, and how feeding therapies and supportive resources can make a difference. We hope Dr. Fiechtner’s compassionate advice helps families feel empowered and reassured as they navigate tube feeding and nutrition. - - - - - SHOW NOTES Learn more about Feeding Matters Learn more about The Oley Foundation JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Check out episode 174 on The Down Syndrome Learning Profile Check out episode 181 with NDSS team member Dana Sciullo and her brother Anthony! Check out episode 262 with NDSS President Kandi Pickard celebrating their 45 years of advocacy! Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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282. Adoption, Purpose, and the Founding of RODS Heroes (w/Brady Murray) 53:20

vor 26 weeks53:20

53:20

Happy first week of November AND National Adoption Month! Today we’re thrilled to welcome Brady Murray, the passionate founder of RODS Heroes. Brady’s nonprofit has helped hundreds of children with Down syndrome find loving homes around the world. As a father of eleven—including two children with Down syndrome—Brady shares his personal journey with adoption, from being adopted himself to adopting seven of his children from around the globe. Hear the inspiring story behind how a triathlon became the seed for RODS Heroes, the miracles he’s witnessed along the way, and why he believes that when we invest in causes greater than ourselves, we experience incredible transformation. This is an episode you don’t want to miss! - - - SHOW NOTES Learn more about RODS Heroes Follow RODS Heroes on Instagram and Facebook Follow Brad Murray on Instagram Follow Cooper Murray on Instagram NBC Nightly News story of Cooper Murray throwing out MLB first pitches JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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281. Can A Person With Down Syndrome Shift Narratives? (w/ Hilary Gauld & Kate Herron) 55:41

vor 27 weeks55:41

55:41

This month we’ve celebrated Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we’re joined by award-winning photographer Hilary Gauld and advocate Kate Herron for this episode all about answering the question: Can a person with Down syndrome Shift Narratives? In 2014, Hilary and Kate collaborated on a fundraising calendar featuring Kate's 10-month-old son, Caleb, for the Waterloo Wellington Down Syndrome Society (WWDSS). What began as a local project quickly grew into a decade-long advocacy journey, evolving into an internationally recognized series that challenges stereotypes and represents the Down syndrome community in meaningful, thought-provoking ways. Hilary’s sharing how her friend Kate’s invitation sparked her dedication to authentically representing the Down syndrome community, the impact her work has had on families seeing themselves and their loved ones reflected in media, and the powerful role of storytelling in breaking down barriers. We’re also chatting about their documentary Decade , which celebrates the ten years of this incredible project, the impact the last ten years have had on their advocacy, what they hope for the future, and so much more! Friends, this is an episode you don’t want to miss! - - - SHOW NOTES Follow One For The Wall on Instagram and Facebook Follow Waterloo Wellington Down Syndrome Society on Instagram Learn more about Decade documentary Check out the ‘Here I Am’ series People Magazine article about the series ‘Believe in Me’ Check out all the incredible series from One For The Wall JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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280. Can A Person With Down Syndrome Find Community & Belonging? 58:45

vor 28 weeks58:45

58:45

This month we’re celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! On today’s episode, we’re answering the question: Can a person with Down syndrome find community & belonging? Today’s conversation is sparked by a recent blog post of Heather’s on why her daughter Macy didn’t attend homecoming this year, we’re chatting about what it truly means for someone with Down syndrome to feel a sense of belonging in school and their wider community. What can we all do to ensure inclusion happens? How can we help build bridges where isolation exists? From clubs and activities to real friendships, we’re chatting about inclusion, community, and what happens when we work together to make existing opportunities even better. Do we have all the answers…never! But we have hope having these tough conversations helps build and maintain those bridges toward community and belonging. - - - - SHOW NOTES Read Heather’s blog post Why My Daughter with Down Syndrome Won't be Going to Her Homecoming Dance Learn more about Best Buddies Listen to our episode with Val Schleider: 43. Back to School & All Things Best Buddies w/Val Schlieder & Allison Covell JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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279. Can A Person With Down Syndrome Live Independently? (w/Emily Kendall & Chad Mayer) 1:01:01

vor 29 weeks1:01:01

1:01:01

This month we’re celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we’re joined by Emily Kendall & Chad Mayer from EmpowerMe Living for this episode all about answering the question: Can a person with Down syndrome live independently? Today, we’re talking about the incredible work of EmpowerMe Living, a program designed to support individuals with disabilities in choosing the best living arrangement for their unique needs. We're with EmpowerMe Living founder, Emily and Chad, who lives independently through the program, as they share their insights on independent versus supported living, overcoming challenges, and how EmpowerMe Living helps families navigate these important decisions. This is an episode you don’t want to miss! - - - - SHOW NOTES Check out EmpowerMe Living’s website to learn more about our: Incredible team Microhome concept First property in Cincinnati Our Cincinnati Housing Market Analysis First Place Global Leadership Institute –Check out their groundbreaking research on housing, including “A Place in the World” and their housing market analyses. Organizations can partner with First Place to conduct a housing market analysis in their community to collect and analyze data about housing needs and preferences directly from adults with I/DD and their families which can then be used to drive effective solutions. Learn more about Beyond Down Syndrome – a wonderful resource for people with Down syndrome and their families focused on independence Blog Emily wrote for this summer about trusting intuition advocating for her son with Down syndrome Emily wanted us to share her son, Luke Kendall on the news ! It has been awesome for Luke’s confidence and skill building, foundations for independence! Learn more about Timothy M Freeman Center, MD, Center for Developmental Disabilities provides adults with I/DD interdisciplinary, patient-centered healthcare. It is one of the few centers in the country pioneering this approach within an academic healthcare system. Learn more about Enable Special Needs Planning to create a plan that enables your child with disabilities to live a great life JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the Adult Summit in Orange County and reserve your spot today! Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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278. Can A Person With Down Syndrome Travel The World? (w/ Erik & Emily Orton) 1:03:34

vor 30 weeks1:03:34

1:03:34

This month we’re celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we’re joined by Erik & Emily Orton for this episode all about answering the question: Can a person with Down syndrome travel the world? They’re sharing their incredible story of sailing the Caribbean, with their family of seven and how their daughter Lily, who has Down syndrome, has inspired them to break boundaries, live without limits, and travel the globe! We’re chatting about caregiver fatigue, challenging conventional ideas of therapies, parenting our kids with and without Down syndrome, and so much more. This is an episode you don’t want to miss! - - - SHOW NOTES Follow Erik & Emily on Instagram Get your copy of Erik and Emily’s book Seven At Sea Check out Erik & Emily’s Podcast and listen to their episode with Lily ! Check out Erik & Emily’s YouTube channel Learn more about how to sail with Erik & Emily for a week! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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BONUS: Why Is The Use Of Terms Like "Mentally Disabled" As An Insult So Harmful? 27:27

vor 31 weeks27:27

27:27

Friends, we’re coming to you with a BONUS episode this week. Over the years we’ve worked hard to provide you with topics that are helpful resources, to be sources of encouragement, and never shy away from difficult conversations. Today, we’re coming to you with a difficult, yet important conversation. This one is taken directly from comments by one of the Presidential candidates. We want to be clear we’re not endorsing either candidate but as a platform that promises to shout worth and work to shift narratives for people with Down syndrome each week, we feel this is an important conversation we need to have with all of you. We hope you’ll join us in this unfiltered and honest conversation. - - - SHOW NOTES No Pity: People With Disabilities Forging A New Civil Rights Movement by Joseph R. Shapiro Listen to Amy Julia Becker’s podcast Reimagining The Good Life Listen to Amy Julia Becker’s episode with Anthropologist Tom Pearson Articles about the comments: New York Times article Disability Scoop article Some helpful links on this topic: National Center on Disability and Journalism Terms to Avoid When Talking About Disability Words Matter! Disability Language Etiquette by the National Education Association How Ableism Affects People With Disabilities National Institute of Health article: Implications of internalised ableism for the health and wellbeing of disabled young people Previous Episodes Like This: 88. (Un)learning the Advocacy Language 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 197. Exposing The Roots (Racism, Ableism, Microagressions, + More) 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 217. The Things People Say 250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson) 27:00

vor 31 weeks27:00

27:00

Happy Down Syndrome Awareness Month!! We’re celebrating this month with episodes based on popular Google search topics about people with Down syndrome. Today we’re kicking off the celebration with Alex Bolden and Genevieve Thompson from the National Down Syndrome Society as we answer one of the most searched questions: Can a person with Down syndrome vote? Alex shares his experience voting for the first time, tips for deciding who to vote for, and resources like NDSS's free checklist and values inventory to help voters prepare. We also discuss how parents and caregivers can support their loved ones in the voting process and the importance of using your voice to shape policies that impact the Down syndrome community. This is an episode you don’t want to miss as we head to the polls next month! --- SHOW NOTES Check Out NDSS Voting Resources: Downloadable checklist Downloadable Values and Beliefs Inventory More Resources To Check Out: Self-Advocates Becoming Empowered (SABE) GoVoter campaign National Disability Rights Network (NDRN) voting resources Voter Registration Deadlines for all states JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Jack’s Basket for sponsoring this episode! EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket) Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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276. What Can't People With Down Syndrome Do? 1:05:53

vor 32 weeks1:05:53

1:05:53

We’re a week away from the start of Down Syndrome Awareness Month! Today we’re kicking off our celebration early with a conversation about common misconceptions people still have about Down syndrome. We’ll be celebrating next month by talking to self-advocates, organizations, and parents who are breaking down the stereotypes of some of the most Googled misconceptions about Down syndrome. We’re sharing our thoughts on the CoorsDown PSA ‘Assume That I Can’ featuring Madison Tevlin and how campaigns like this work to shift narratives. We’re chatting about how knowing and loving a person with Down syndrome has shifted how we value and see worth, no matter what someone can or can’t do. Join us as we get this important conversation started! - - - - SHOW NOTES CoorDown’s PSA Assume That I Can PSA with Madison Tevlin Read Heather’s blog post What if my child with Down syndrome can’t? CoorDown’s Just The Two of Us PSA Other episodes like this: 163. What does success mean to you? 185. What if my child with Down syndrome can't? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year’s NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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275. Advocacy In Action: Amanda Owen on Building a Strong Community 1:06:05

vor 33 weeks1:06:05

1:06:05

Today, we’re excited to chat with Amanda Owen, the founder and executive director of Puzzle Pieces! Amanda has dedicated her life to supporting individuals with intellectual disabilities—a passion deeply rooted in her own family’s experiences. She’s sharing her experience growing up with a sibling with disabilities and how the dynamic has evolved as an adult that led to her journey of starting a non-profit. We’re chatting about having conversations around disability with our kids, how to cultivate meaningful and impactful friendships with people with disabilities, employment for adults with disabilities, group homes, and so much more! Friends, this episode is packed with incredible advice, stories, and even a few tears, this is an episode you don’t want to miss! - - - - SHOW NOTES Learn more about Puzzle Pieces Learn more about Amanda’s books Pre-order Amanda’s new book Rarely Different: A Sibling’s Memoir Learn more about Amanda’s story Follow Amanda Owen on Instagram Listen to last week’s episode on volunteering: 274. Are We Losing The True Meaning of Volunteering? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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274. Are We Losing the True Meaning of Volunteering? 52:25

vor 34 weeks52:25

52:25

Friends, you know we ask all the questions…even if we don’t have all the answers! Today, we're diving into a topic that hits close to home for many of us—volunteering. We're asking some tough questions: What happens when volunteering becomes more about extra credit or resume-building? How does this culture impact our efforts to shift harmful narratives? How can we make sure we teach our kids that volunteering isn’t just for show or awards? We’re chatting about how to make sure our volunteering efforts are intentional and meaningful, and our personal experiences that have made a meaningful impact. We know it's not about being the hero—it's about building bridges, we hope you’ll join us for this important conversation and share your thoughts and experiences with us! - - - - SHOW NOTES Learn more about 99 Balloons . Learn more about Kids To Kids . Other Episodes Like This: 28. Owning Your Influence In ALL Your Spaces! 43. Back to School & All Things Best Buddies w/Val Schlieder & Allison Covell 59. Finding Community at GiGi's Playhouse w/Nancy Gianni 151. Finding People That Don't Feel Sorry For You (ft. Jo Lopez) 169. The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 217. The Things People Say 221. A Letter To The Parents Of Our Kid's Peers 250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off ! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

The Lucky Few

1
273. Breaking Down Barriers: The Parent’s Role In IEP Success (w/Ashley Barlow) 1:04:38

vor 35 weeks1:04:38

1:04:38

We’re excited to have Ashley Barlow back on the podcast today! We’re discussing the power of parental involvement in IEPs and why it’s so important for your child’s educational success. Ashley breaks down her research and shares personal stories from her journey with her son Jack, who has Down syndrome. This episode is packed with practical advice on how you can take an active role in your child's education, navigate challenges, and become a stronger advocate. Whether you’re facing challenges or just want to ensure your child’s needs are met, this episode is full of advice you won’t want to miss! --- SHOW NOTES Learn more about Ashley Barlow Co Follow Ashley Barlow on Instagram Follow Ashley Barlow on Facebook Check out Ashley Barlow’s Free and Affordable Resources Our previous episode with Ashley Barlow: 131. BTS Pt 2 - Preparing for the School Year.. IEPS + Special Education w/Ashley Barlow Learn more about the NDSS Advocacy Conference JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code BTS21 for 21% off (through August) ! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor ? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year’s NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, Jack’s Basket for sponsoring this episode! EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket) LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.…

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