“How could this owl, who was born in captivity, lived his whole life in a cage, how could he possibly survive? He's going to be dead in a few days. That's what everybody thought.” – Christine Mott In February 2023, a Eurasian eagle-owl named Flaco made headlines—and captured hearts—when he escaped from his small enclosure at the Central Park Zoo. Born in captivity and unable to fly or hunt, Flaco defied every expectation. In just weeks, he taught himself to soar across the Manhattan skyline, hunt for his own food, and live as freely as an owl could in a city of concrete and glass. For more than a year, New Yorkers spotted him perched in Central Park, on high-rises, even outside apartment windows—cheering him on as a symbol of resilience and freedom. Today’s guest, attorney and lifelong animal advocate Christine Mott, has immortalized Flaco’s story in her new children’s book, Free Bird: Flaco the Owl’s Dreams Take Flight . Told from Flaco’s perspective, the book celebrates courage, hope, and the right of all animals to live free—without cages or confinement—while gently encouraging young readers to see captivity through an animal’s eyes. This conversation is about Flaco’s extraordinary journey, the lessons he left behind, and how one small owl sparked big changes for animals in New York and beyond. Links: https://lanternpm.org/book/free-bird/…
Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
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A genetic disease Cover art photo provided by Efe Kurnaz on Unsplash: https://unsplash.com/@efekurnaz
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By Brayden and Tyler
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Podcast by Jerry Cahill
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This podcast dives deep into the risks and benefits of attempting gene therapy on cystic fibrosis patients. Listen to see the final decisions made on the matter.
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Jerry Unplugged: A Cystic Fibrosis Podcast

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Jerry Unplugged: A Cystic Fibrosis Podcast
Jerry Unplugged: A Cystic Fibrosis Podcast
Podcast by Jerry Unplugged: A Cystic Fibrosis Podcast
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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Our Fight to Breathe: A Cystic Fibrosis Podcast
Caleigh Haber-Takayama
This is the Fight2Breathe podcast, hosted by Caleigh Haber, a cystic fibrosis survivor and two-time double lung transplant recipient. The podcast aspires to be the go-to platform for the CF community, featuring powerful personal stories, expert insights, and the latest advancements in CF care. Each episode engages individuals living with CF, their families, caregivers, and medical professionals, fostering understanding, celebrating victories, and tackling challenges. Tune in to inspire, educ ...
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Breathe In: A Cystic Fibrosis Podcast

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Breathe In: A Cystic Fibrosis Podcast
Gunnar Esiason and the Salty Cysters
A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cy ...
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My name is Justin. I created this podcast to tell the life of a person with Cystic Fibrosis. I am in my late 30's and run half marathons as well as live the life as best as I can in San Diego, CA.
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WTCF! A Cystic Fibrosis Podcast

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WTCF! A Cystic Fibrosis Podcast
What The CF! A Cystic Fibrosis Podcast
When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey. We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living wit ...
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Fearless with A Fearful Illness | A Cystic Fibrosis Podcast

A dynamic Cystic Fibrosis Podcast, educating people on the different experiences and lives that CFers face. Discussing all sides of CF, including the fearful, the ambitious, the emotional and the challenging. A podcast that is purposely made to educate but more importantly comfort fellow CFers and support the CF community💛
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Living With Cystic Fibrosis

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MRI Fingerprinting: Revolutionizing Care for Rare / Dr. Chris Flask
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36:28
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36:28What if a scan could do more than show you a picture, what if it could tell you a story about what’s happening inside a child’s body, in real time? That’s exactly what Dr. Chris Flask is working to make possible. Dr. Flask is a Professor of Radiology, Biomedical Engineering, and Pediatrics at Case Western Reserve University and University Hospitals…
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Living With Cystic Fibrosis

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Singing, Acting and Advocacy: It's in Julia Rae's DNA!
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39:44“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia Rae From the moment Julia Rae could speak, she was singing, and from the moment she could dream, she was already imagining a bigger stage. As her mother fondly recalls, at just two years old, Julia was watching Barney on TV and asked, “How do I get in …
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Living With Cystic Fibrosis

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Sophie Holmes: 36 marathons in 36 days
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36:59Never Just Surviving: Sophie Holmes on Running 36 Marathons with Cystic Fibrosis Despite a schedule packed with training, advocacy, and breaking world records, Sophie Holmes of the U.K. always makes time to share her story, and we’re so grateful she did. Diagnosed with cystic fibrosis at just four months old, Sophie was told she might not live past…
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Living With Cystic Fibrosis

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Advocacy in Action: From the Front Lines
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52:28“It’s an honor to be an advocate,” says Laura Bonnell, founder of The Bonnell Foundation. “We are the government—people are. If we don’t fight for fair laws that help the people they’re meant to serve, who will?” In this episode, Laura is joined by five passionate advocates—some seasoned, some new—who recently traveled to Washington, DC, to meet wi…
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Living With Cystic Fibrosis

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The power of yes: it saves lives (Mike Walters and Jason Vandiver)
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47:00We have a powerful conversation about dedication, innovation, and impact in the cystic fibrosis community in this podcast. I’m joined by two incredible guests from MVW Nutritionals: Mike Walters and Jason Vandiver. Mike Walters is a true pioneer in pharmaceutical business and innovation, with nearly four decades of experience. He began his career a…
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Living With Cystic Fibrosis

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How to provide lung health everyday
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40:53Substack is where I discovered Dr. MeiLan Han! I was browsing through and was pleasantly surprised to read an article, and learn that she wrote a book called, Breathing Lessons. And to top it off, she’s from my home state of Michigan. I also learned the Dr. Han’s book was “a passion project during the pandemic.” I’m delighted to share a conversatio…
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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Navigating Daily Life with CF
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55:21In this powerful episode of Our Fight to Breathe, host Caleigh Haber sits down with her close friend Nick Di Brizzi Jr., a double lung and kidney transplant recipient who has turned his journey with cystic fibrosis into a mission of hope and service. Nick, an actor, athlete, and founder of the Breathe Like a Boss Foundation, shares nearly a decade …
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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Cystic Fibrosis’s Impact on Mental Health
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1:02:10In this powerful episode of Our Fight to Breathe, host Caleigh Haber welcomes KC White, Chair of the Board of Trustees at the Cystic Fibrosis Foundation and a leading voice in the CF community. KC, who holds a Master's degree in Applied Positive Psychology from the University of Pennsylvania, brings over two decades of advocacy experience and deep …
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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The Importance of Specialized CF Care
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53:29In this episode, host Caleigh Haber interviews her personal CF physician, Dr. Patricia Eshaghian, Director of the Adult Cystic Fibrosis Program at UCLA Health. Dr. Eshaghian shares her journey into CF care and explains why specialized, accredited CF centers are crucial for patient outcomes. With over 20 years of experience, she emphasizes how compr…
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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Fitness and Nutrition in Managing CF
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52:16Join host Caleigh Haber as she welcomes Ben Mudge, a fitness coach, cystic fibrosis advocate, and author of the upcoming book Fitness Without Limits. Born with CF and diagnosed at three days old, Ben has transformed his approach to health from a military-influenced upbringing into a thriving 13-year coaching career helping others embrace their pote…
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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The Trikafta Experience
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1:00:21In this powerful episode, we sit down with Caleb and Tiffany Remington (@ustheremingtons) to explore life beyond Trikafta, the groundbreaking CFTR modulator that has transformed the CF landscape for roughly 90% of patients. Caleb, who lives with cystic fibrosis, and Tiffany, his wife and caregiver, share their honest perspective on navigating this …
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In this powerful episode of Our Fight to Breathe, host Caleigh Haber sits down with Emily Kromar-Grolinkoff, founder of Emily's Entourage and a nationally recognized advocate for cystic fibrosis research. Diagnosed with CF at six weeks old, Emily has transformed her personal journey into a global movement, building a groundbreaking nonprofit that a…
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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CF Caregiving: A Husband’s Perspective
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1:13:30In this deeply personal episode, host Caleigh Haber sits down with her husband Bryan Takayama to explore the often-overlooked perspective of CF caregivers. Bryan, an entrepreneur and co-founder of Notion State, shares his decade-long journey from meeting Caleigh one year post-transplant to becoming her primary caregiver through organ rejection, a s…
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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Navigating the Complexities of the Healthcare System
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45:09In this episode of Our Fight to Breathe Podcast, host Caleigh Haber Takayama sits down with Aaron Stocks, Senior Manager of Case Management and Operations at the Cystic Fibrosis Foundation's COMPASS program. Aaron brings a unique dual perspective—he both lives with cystic fibrosis and professionally helps others navigate the complex healthcare syst…
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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Coping with Grief and Keeping the Legacy Alive
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44:25In this deeply moving episode, host Caleigh Haber sits down with Diane Shader Smith, a powerful advocate in the cystic fibrosis community and author whose daughter Mallory lived with CF until age 25. Diane has channeled her grief into meaningful advocacy work, sharing Mallory's story through the acclaimed books "Salt in My Soul" and "The Diary of a…
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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Intersecting Identities: Coming Out and Living with CF
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44:36Episode Description: In this powerful episode of Our Fight to Breathe, host Caleigh Haber sits down with Brandon Wright, a 37-year-old licensed social worker and certified dementia practitioner living with cystic fibrosis. Brandon shares his deeply personal journey of navigating identity at the intersection of chronic illness and being a member of …
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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Life Post Transplant and the Transplant Games
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1:02:48
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1:02:48Join host Caleigh Haber as she sits down with Matt De Fina, a two-time double lung transplant recipient, father, athlete, and advocate who has earned 37 medals competing in the Transplant Games of America and World Transplant Games. Matt's journey from end-stage cystic fibrosis to becoming a competitive athlete showcases the incredible possibilitie…
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Our Fight to Breathe: A Cystic Fibrosis Podcast

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Built to Fight: The Woman Who Raised Me
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59:35In this episode, host Caleigh Haber welcomes her mother, Lizeth Bosch Haber, as her first guest to share the remarkable journey that shaped both their lives. As Caleigh's primary caregiver and fiercest advocate, Lizeth provides an intimate look into the realities of raising a child with cystic fibrosis, from navigating the initial diagnosis and eme…
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Living With Cystic Fibrosis

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Personalized Mission: The Rosenau Family Foundation story
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34:10"Oh, the people you’ll meet, and the places you’ll go..." That classic Dr. Seuss line couldn’t have been more true when I found myself at a rare disease conference, taking with Dr. Gabriel Cohn. A quiet presence with a resume that reads like a roadmap through the last 30 years of rare disease breakthroughs, Dr. Cohn is the kind of person who remind…
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Welcome to Our Fight to Breathe, a podcast amplifying voices from the chronic illness and rare disease community. Hosted by Caleigh Haber, who lives with cystic fibrosis and has undergone two double lung transplants, this show explores the realities of life with serious health conditions—the triumphs, grief, medical complexities, and human stories …
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Living With Cystic Fibrosis

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Costco to Connection: Magazine to Mic with Michelle Glogovac
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47:44From Costco to Connection: Podcast Advice That Changed Everything When I spotted a feature on podcasting in The Costco Connection, I was excited. When I saw Michelle Glogovac featured? I knew I had to reach out. That decision turned into one of the best moves I’ve made for growing my podcast. Michelle, THE Podcast Matchmaker®, publicist, and author…
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Living With Cystic Fibrosis

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Voices of Care: A Live and Unfiltered Conversation
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1:16:39Live from Mix and Mingle Education Day: A Powerful Conversation with Caregivers In this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of caregivers—grandparents, parents, stepparents, dads, and friends—for a heartfelt discussion about the emotional journey of caring for a loved one wit…
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Living With Cystic Fibrosis

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Obesity in CF: A New Challenge in a Healthier Future
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38:12Cystic Fibrosis and obesity? Until recently this has not been a topic of conversation for the CF community. The reason for obesity in the CF community is better health and longer lives, so the concern is now a reality. University of Michigan CF doctor, Carey Lumeng is researching the issue. As he says in this podcast, researchers have a lot to lear…
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Living With Cystic Fibrosis

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70 years strong: The Luanne McKinnon story.
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1:03:30A 70-year-old person with cystic fibrosis. It’s a phrase that wasn’t just uncommon a few decades ago—it was virtually unheard of. When Luanne McKinnon was diagnosed in 1969 at just 13 years old, doctors told her parents she might live to be 19 years old. Today, Luanne stands on the edge of her 70th birthday—a milestone that not only redefines possi…
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Living With Cystic Fibrosis

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Live Fearlessly: Jacob Venditti
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31:54Eight miles. Two friends. One cause. This episode now holds even deeper meaning. Jacob Venditti, who has since passed away from complications of cystic fibrosis (August 16th 2025), shares his story with a raw honesty that feels like a gift. He opens up about life with CF, the daily challenges he faced as he prepared for a lung transplant, and the v…
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Living With Cystic Fibrosis

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From Bulky to Breakthrough: The Future of Airway Clearance
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27:37From Clunky to Cutting-Edge: The Evolution of Airway Clearance with Nicole Dunn When our daughters first received their vest machines, they felt like they weighed a hundred pounds and had to be plugged into the wall. The vests didn’t fit well—riding high in the armpits and leaving much to be desired in comfort and function. Fast forward 25 years, a…
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Living With Cystic Fibrosis

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Milestones, Medicine, and the CF Community with Siri Vaeth
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53:36CFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend. We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mentor. Siri is truly among the smartest people I know. She is an advocate for her daughter Tess, who has CF, and is an incredible advocate for the CF comm…
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Living With Cystic Fibrosis

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Aaron Trumm: living his best life!
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45:23I love that I was able to bump into Aaron Trumm via an email. He reached out to check in about our scholarship program for college. We only award grants to undergrad students, but I was intrigued by all I learned about him. Aaron has CF, he is post-transplant, he started a recording label, he plays the piano and wraps, And he worked with the man kn…
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Living With Cystic Fibrosis

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Bob Coughlin, CF Dad: from Congress to Science
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45:50CF Dad Bob Coughlin see's a cure in the future for his son, and all of our kids. His high energy in this podcast is contagious. In this conversation, Laura Bonnell and Bob Coughlin discuss the journey of Bob's son, Bobby, who has cystic fibrosis. They explore the advancements in treatment, the importance of advocacy, and the intersection of policy …
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Living With Cystic Fibrosis

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Michael Armstrong, wise beyond his years
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26:45Michael Armstrong is a 25-year-old pre-law student. He loves to read, paint, play card games and video games. He was diagnosed with CF as an infant. We’re going to talk about his CF journey and how life took a turn when he was being evaluated for a lung transplant in 2023 and 2024. Michael was featured in the 2025 Portraits of cystic fibrosis calen…
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Living With Cystic Fibrosis

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Life after the death of a child to CF
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42:53If you lose a child to CF, what does that do to parents? To their identity? And their place in the CF community. These are hard discussions to have, but for a couple years now Peggy Hawkins has want to share her story on this podcast. Peggy talks about the toll waiting for a transplant takes on a family. One of the issues was that one of them alway…
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Living With Cystic Fibrosis

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Advocate, Amanda Boone
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1:05:19Saving yourself by way of advocacy. Living with cystic fibrosis podcast host, Laura Bonnell talks to CF advocate, Amanda Boone about the fight that grew from a threat to her medications in Colorado. Amanda has led the way against the Prescription Drug Affordability Board (PDAB). Amanda, who has CF, was struggling prior to 2019 because her health wa…
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I have known Becky Penuel for many years. Becky used to run Miles for cystic fibrosis and then merged her nonprofit with Brian Callanan’s nonprofit, CF Life Fitness. After the merger, the nonprofit name is now: BreatheStrong. Becky is the Executive Director and was not able to join us today but, her Director of Operations is with us . Shawna Gray i…
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Living With Cystic Fibrosis

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NonProfit Spot, Heather Carmona
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38:25The NonProfit Spot: a wealth of resources and classes about how to grow your board, fundraise and make strategic decisions that will change the trajectory of your Foundation for the better. They have an excellent newsletter too. Heather Carmona, the Managing Director (and co-founder) of NonProfit Spot is a great friend and I am honored to share all…
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Living With Cystic Fibrosis

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Rare Disease Diversity, Jenifer Waldrop
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34:48I encourage everyone to attend conferences when you can. I meet the most interesting experts in the field of the nonprofit world. From scientists, to pharma, to other nonprofit execs like me. I was thrilled to meet Jenifer Waldrop. She joined the Black Women’s Health Imperative as the Executive Director of the Rare Disease Diversity Coalition (RDDC…
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Living With Cystic Fibrosis

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Melissa Yeager, Claire's Place Foundation
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44:58Melissa Yeager, Executive Director and Co-Founder of Claire’s Place Foundation Since the planning stages of Claire’s Place Foundation, Melissa has spent countless hours working for the cause and, of course, raising her two children, Claire (the foundation’s namesake) and Ellie. With many years’ experience in project management and event planning, s…
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Living With Cystic Fibrosis

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Rock Star, Emily Schaller: one on one.
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30:39Emily Schaller, 42, is a heroine with one goal in mind, to Rock CF. A lot of laughs on this podcast with my friend Emily! She talks about her health, the Foundation, new and old legislation and what's coming up in 2025! Equal parts spark, wit and humor, Emily is claiming her victories against cystic fibrosis having launched the Rock CF Foundation i…
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Living With Cystic Fibrosis

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Healthcare funds you could be eligible to get, but probably don't know about.
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35:39“Charity Care is the best kept secret in healthcare.” says Eli Rushbanks "Only 29 percent of the people who should be helped by 340B, are helped." If, like me, you have not heard about Charity Care or Dollar For, I am glad you're here! This podcast will tell you about both Charity Care and the nonprofit, Dollar For. I learned about the program duri…
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Living With Cystic Fibrosis

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Rare Disease Ph.D. Beth Vanstone and Laura Bonnell
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27:39Are titles important? As a rare disease parent, we think you're worthy of a Ph.D. Listen to our fun conversation about all things rare and the much needed title we may need (or not) to get things done. As a reminder, Beth Vanstone is the mother of two daughters, one who has CF. Madi is 23 years old. Beth is a huge advocate in Canada, and much of th…
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Living With Cystic Fibrosis

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Private Patient Advocate offers you help
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31:46What is a Private Patient Advocate? Do you need one? Laura talks to Dr. Elena Borrelli who is a Doctor of Medical Science and a Board-Certified Patient Advocate who helps people and families with their health care journey. She practices in Shelby Township, Michigan. Dr. Borelli manages their healthcare as she tries to help them live their healthies…
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Living With Cystic Fibrosis

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Running a marathon with CF: Dylan Mortimer
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35:10Dylan Mortimer did the NYC Marathon. If you know him, you know that he had two double lung transplants. One in 2017 and one two years later in 2019. His second transplant was in NYC and Dylan talks about what it was like to go back to the streets he could barely walk, pre-transplant. It so touching as Dylan chairs his story with us. I appreciate al…
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Living With Cystic Fibrosis

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Partnership to Improve Patient Care: legislation explained!
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43:51Patient rights: do you know about the rights you have in regard to healthcare? There is a lot of information for you that Sara and Thayer serve to you here, in terms you can understand. They both work for the Partnership to Improve Patient Care, or PIPC (a coalition). Sara Traigle van Geertruyden is the Executive Director at PIPC. Thayer Roberts is…
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Living With Cystic Fibrosis

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Heather Trammell: CF and finding your voice
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37:53Life with CF is different for everyone. We have a lot of the same challenges, but we do grow with the disease differently. Heather Trammell, CF Mom to 7 year old Charlie is married to Christopher, (for 13 years now). Heather is a legal assistant in the compliance department at Credit Acceptance. Heather has so much CF Mom wisdom. I am glad to call …
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Living With Cystic Fibrosis

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Touraj Manshadi falling through the gaps in health policy
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36:41We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell. Beth is introducing us to 32-year-old To Touraj Dehghan Manshadi who has a CF mutation that is common to Iran, but rare in Canada where he lives. You may be surprised to learn Canada does not have a rar…
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Living With Cystic Fibrosis

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CURE FOUND MSU EXPANDS TO UM
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39:10I always tell this group of undergrad students that they are our future, and that makes the future look bright. Atef Choudhury and Naim Mashni are incredible people and students. They're both Seniors at Lyman Briggs College -- majoring in Human Biology. They're minor is in business and they're on the pre- med track. Atef and Naim are the co-founder…
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Living With Cystic Fibrosis

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Laura Bonnell - From news reporting, to CF and beyond.
31:04
31:04
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31:04From news reporting, to CF and beyond. Laura talks about her journey. The Bonnell Foundation: Living with cystic fibrosis is 14 years old. "I was so hopeful all those years ago, that my Foundation would take off, and now look at it! We have helped CF families from Michigan to California with financial assistance, lung transplant grants and Educatio…
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Living With Cystic Fibrosis

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Sorcha's CF journey: from diagnosis to addiction and discovery
44:28
44:28
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44:28We discuss suicide in this podcast. This could be a trigger for some for you. Please remember the National Suicide Hotline can be reached via text or by calling 988. Sorcha Slyvester-Martin from diagnosis to drugs and discovery. When she was three days old, she was diagnosed with Cystic Fibrosis. She says she had several near-death experiences. Her…
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Living With Cystic Fibrosis

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My brother and me! Rare, a bit of CF & COTA!
41:11
41:11
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41:11In this podcast you'll meet my brother Noah Teicher, and my nephew Colton Teicher. I have two younger brothers, but my brother Noah (the middle child) has two boys who had a rare disease. And we talk about their journey from having a rare disease to being cured. Noah and Colton talk about their journey with the Children’s Organ Transplant Associati…
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Living With Cystic Fibrosis

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Diary of a Dying Girl, Diane (Mallory) Shader Smith
27:26
27:26
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27:26Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, "Salt in My Soul". This book gave insight into how Mallory was feeling during her CF fight. Her deepest thoughts, and life lessons. Diane Shader Smith is now releasing a second book on b…
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Living With Cystic Fibrosis

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Special Insurance for CF families (and others) in MI
33:29
33:29
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33:29Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access to the program has nothing to do with your household income. The program has a lot of benefits. CSHCS covers transportation that can include airfare a…
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