Hunt the Experience
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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to ...
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End of Life: The Caregiver Perspective, Part 2
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End of Life: The Caregiver Perspective, Part 2Von Help4HD
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So long, but not goodbye
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36:29
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There comes a time to know when to quit, this is that episode. I won’t get into all the details here but I did say when Nick and I restarted recording episodes that if I decided it was time to stop I would be sure to let everyone know this time instead of just disappearing. In this episode we announce the winner of Nick’s hardcover edition of Clums…
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UF Fixel Institute for HD Patients with Dr. Nick McFarland
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For more information about the UF Fixel Institute located in Gainesville, FL, please click here.Von Help4HD
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Records and Recurves
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1:05:08
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Nick and I spend a bit of time catching up and then jump into a discussion about vinyl records. I know this is a bit out of the ordinary but we had spoken at the end of our last episode about how vinyl records had made such a comeback and the similarities between traditional archery/bowhunting and vinyl records. As you will hear we are a bit passio…
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HDYO Ambassador: MollyVon Help4HD
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To read the blog post BJ Viau wrote, please click hereVon Help4HD
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HDYO Ambassador GemmaVon Help4HD
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HD Uncut: Being Gene-Positive & a Scientist
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"Bri" joins me to discuss what it's like being gene-positive for HD and a scientist doing HD research.Von Help4HD
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Nick and I spend a bit of time having a discussion about a recent Facebook post that got our attention. The post we are talking about asked the question: “would our great grandfathers would be proud of the pursuit of trophy whitetails by hunters today?”. There was a good bit more unpack with that post and Nick and I just had a conversation much lik…
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End of Life: The Caregiver Perspective
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25:00
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25:00
End of Life: The Caregiver PerspectiveVon Help4HD
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We are Stronger TogetherVon Help4HD
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HDYO Ambassadors Series: Carly
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Please contact Jenna Heilman if you're interested in learning more about the HDYO Ambassadors program.Von Help4HD
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HD Genetics & Clinical Trials with BJ Viau
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30:00
Please visit hdgenetics.com for more information.Von Help4HD
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HD Uncut with GinaVon Help4HD
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HD Awareness Month Wrap-up with Judy Bradley
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As a way to wrap up HD Awareness Month, let's #LightItUp4HD on social media tomorrow! Share a video or photo of you with blue and/or purple glow sticks tomorrow. Make sure to use #LightItUp4HDandJHD and/or #2024LightItUp4HD. If you want, also share why you're lighting it up for HD/JHD.Von Help4HD
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Turkeys, Dead Batteries and Chili
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Nick and I spend a bit of time catching up on spring activities…….Nick is off to an interesting start to 2024! Please subscribe to the podcast on your favorite podcast platform and leave a rating and review. I would also appreciate ideas for future podcasts and feedback on this or other episodes. So feel free to reach out to me at the email address…
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Recap of my visit with UniQure for HD Awareness MonthVon Help4HD
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Act for ALS (and HD) with Thom Hart
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Thom Hart is the Director of Outreach with the Critical Path Institute (C-Path), which is a nonprofit created by the FDA to "improve the drug development process. It operates as a neutral third party to enable scientists from the regulated industry and international regulatory agencies to work together with scientists from academia and patient grou…
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HDYO Ambassadors: Ashley
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For more information about the HDYO Ambassadors program, please visit www.hdyo.org.Von Help4HD
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T.O. Episode 146 – Living Among and Remembering Legends
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With recent events in the traditional archery community Nick and I both felt we needed to reflect on time spent with individuals no longer with us and their impact on the sport. This episode is dedicated to the memory of Jerry Brumm, he will be greatly missed. Please subscribe to the podcast on your favorite podcast platform and leave a rating and …
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What I learned at the World Orphan Drug Congress
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I recently attended the World Orphan Drug Congress in Boston, MA. The audio for this episode is from my YouTube video that you can find here: Dying to LiveVon Help4HD
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HD Uncut with Meredith Patterson
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Meredith Patterson is a performing artist, author, and producer whose family was impacted by Huntington's Disease. To learn more about her, please visit her website: https://meredithpatterson.com/ She also has a podcast called "Confessions of an Actress". This week on her podcast, she shared about Huntington's Disease as a way to raise awareness. Y…
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T.O. Episode 145 – Split bamboo, trout in every net and no good deed….
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Nick joins me to chat about the recent NC Trout Season opener from this past weekend. Great times with good friends and some good “fish tales” came out of the trip along with a last minute mishap. As always, we hope you enjoy. Please subscribe to the podcast on your favorite podcast platform and leave a rating and review. I would also appreciate id…
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Using Optical Tweezers in HD with Dr. Piere Rodriguez-Aliaga
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Piere Rodriguez-Aliaga, PhD, is a young investigator whose current HD research is funded by the Hereditary Disease Foundation. He is using a new Nobel Prize-winning technology called Optical Tweezers to study one huntingtin molecule at a time, which allows access to structural information about pathogenic and non-pathogenic huntingtin variants with…
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Cognitive Symptoms & Patient-Reported Outcomes with Dr. Jennifer Petrillo Billet
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Jennifer Petrillo Billet PhD is an Executive Director and Program Lead for investigational dalzanemdor, or SAGE-718, at Sage Therapeutics. She is responsible for driving the global development strategy, including delivery of the right evidence for key stakeholders including regulators, payers, and providers, and patients. Dalzanemdor is being evalu…
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HDYO Ambassador Series: Rhiannon
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Please visit www.hdyo.org for more informationVon Help4HD
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T.O. Episode 144 – Just Shootin the……Squirrels
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While I am sitting in a hotel room in Houston Texas, Nick and I spend some time chatting about hunting small game, mainly squirrels, and a return to the hunting that got many of us into the woods at an early age. We hope you enjoy. Please subscribe to the podcast on your favorite podcast platform and leave a rating and review. I would also apprecia…
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Please visit the Factor-H website for more information. Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.Von Help4HD
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Samantha and I got to participate in a focus group together. Here our thoughts about research and more!!Von Help4HD
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T.O. Episode 143 – Dammit Carl
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Nick and I chat about his new book, “Clumsy Predators” and he asks me for the full story behind “Dammit Carl”. Please subscribe to the podcast on your favorite podcast platform and leave a rating and review. I would also appreciate ideas for future podcasts and feedback on this or other episodes. So feel free to reach out to me at the email address…
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HDYO Ambassadors Series: Ep 1. with Robyn
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HDYO Ambassadors Series: Ep 1. with RobynVon Help4HD
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T.O. Episode 142 – 2023 Revisited
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Nick rejoins me for a podcast recording session for the first time in over a year. We spend the time catching up and sharing insights into our 2023 Whitetail seasons. I personally made it out very little with a longbow in ’23 but I did return to hunting with both Blackpowder and firearms in 23 and Nick shares some details about multiple opportuniti…
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HD Uncut, Ep. 12, with John Howard
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Happy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry with the HD Community.Von Help4HD
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Layers of Love with Dave, Susie and Erika
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Happy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses with HD, how they found each other, and how they continue to support one another while caring for their k…
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T.O. Episode 141 – It’s Been a Spell
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It’s been quite some time since a new episode was dropped. In this episode I discuss why the gap, what to expect going forward and a few other things. Nick will rejoin me on the next episode, I recorded this one solo just to set the stage for what is to come. I hope you enjoy and another episode will be headed your way in a week or two. Please subs…
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"We Exist" with Tanita Allen
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To follow Tanita Allen, please visit her website: https://tanitaallen.com/ Here is the link to purchase a copy of Tanita Allen's book: We ExistVon Help4HD
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DNA Repair in HD with Dr. Joseph Hamilton
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28:00
Please visit the Hereditary Disease Foundation website to find out more information.Von Help4HD
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@thehdhun with Charlotte
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24:00
If you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhun Instagram handle - @thehdhun TikTok - Click HereVon Help4HD
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HD Uncut, Ep. 11, with Dina De Sousa
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HD Uncut, Ep. 11, with Dina De SousaVon Help4HD
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HD Charge with Dr. Jamie Hamilton
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Jamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease.Von Help4HD
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Greater than HD in 2024
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27:00
Greater than HD in 2024Von Help4HD
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HD Uncut, Ep. 10 with Leah
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HD Uncut, Ep. 10 with LeahVon Help4HD
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Livable Lives with Christy Dearien
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If you'd like to follow Christy on social media, you can find her here: Facebook - www.facebook.com/ChristyDearien Instagram - @christydearienVon Help4HD
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Welcome to Help 4 HD, Anna Lunsford!
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If you would like to send your resources and tips and tricks to Anna for our new database, please go to the Help 4 HD website - www.help4hd.org - go to Contact Us and submit. Anna is regularly checking submissions through the website. You can also send it directly to her email at anna@help4hd.orgVon Help4HD
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Help 4 HD 2023 with Katie and Katrina
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For more information about all that Help 4 HD is doing, please visit the website - www.help4hd.orgVon Help4HD
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Coping During the Holidays with Melissa W.
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Coping During the Holidays with Melissa W.Von Help4HD
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Lauren shares her feelings about the holidays and her recent birthday.Von Help4HD
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Dr. Katja Obieglo joins Lauren to talk about the research Vico Therapeutics is doing. To learn more, please visit their website here.Von Help4HD
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HD Community Advisory Board with Jenna Heilman
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40:00
If you'd like to learn more about HD-CAB, including how to become a member, please visit the website here. You can also contact Jenna Heilman at jenna@hdyo.org.Von Help4HD
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HD Mythbusters: Generation HD2
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Rita Gandhy is a movement disorders neurologist and comes with over 4 years of experience at Roche/Genentech. Prior to her current work in USMA, Rita led the Study Review Team for a planned tominersen study in late onset Huntington's Disease, being responsible for developing the protocol and study set up. Before USMA, Rita was in the Product Develo…
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