Kidney Transplant Conversations features diverse voices and experiences of donating, receiving, and caring for this gift of life. Each new episode features interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders We invite you to subscribe and let Kidney Transplant Conversations keep you connected, informed and inspired with a constant flow of new thoughts and ideas. Send suggestions for guests and topics to: rolf.taylor@projectadvocacy.com
…
continue reading
My journey upon receiving a kidney transplant! I’m a professional, wife and mom from Bermuda and had this life changing surgery at Brigham and Women’s Hospital in Boston, MA.
…
continue reading
1
S2 E5. Giving thanks for kindness, science and cooperation during Thanksgiving week. Liz, Grace & Shelley Part 1.
36:57
36:57
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
36:57
S2 E5. Giving thanks for kindness, science and cooperation during Thanksgiving week. A kidney paired donation story. Liz, Grace & Shelley - Part 1 What if you saw a billboard asking for a volunteer to donate a kidney and “share your spare” to save someone’s life? What if it just made immediate sense to you, and you found yourself saying yes? Meanwh…
…
continue reading
1
S2 E4. Mingling with the Crowds at the Transplant Games of America's Parade, 5K, and Ceremonies - Part 2
28:32
28:32
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
28:32
Welcome to the latest episode of Kidney Transplant Conversations, where we continue our exploration of the Transplant Games of America in San Diego. This inspiring event, bringing together organ donors, recipients, and their families, marks a joyful reunion after the challenges posed by the pandemic. The San Diego games also celebrates it's uniquel…
…
continue reading
1
S2 E3. Celebrating Love of Life and Second Chances at the Transplant Games of America. With Team North Carolina - Part 1
23:09
23:09
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
23:09
With members of Team North Carolina as our guide, we delve into the vibrant world of the Transplant Games of America. Discover the rich history of these games, which began in 1978 in England and have since evolved into a significant event for transplant recipients and donor families in the U.S. Hosted by the Transplant Games of America, this bi-ann…
…
continue reading
1
S2 E2. Finding Your Voice: An Organ Transplantation Journey from Childhood to Advocate with Valen Keefer
28:02
28:02
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
28:02
In this compelling episode of Kidney Transplant Conversations, Valen Keefer joins us to share her extraordinary journey through the world of organ transplantation. From a young age, Valen faced the challenges of living with a chronic illness, navigating the complexities of kidney and liver transplants. Her story is one of resilience, advocacy, and …
…
continue reading
1
S2 E1. A Christmas Miracle: Shana Pereira's Journey of Hope and Resilience
47:49
47:49
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
47:49
In this heartwarming episode of "Kidney Transplant Conversations," host Rolf Taylor sits down with Shana Pereira, a remarkable woman who received both a kidney and heart transplant on Christmas Day. Shana shares her extraordinary journey, beginning with the discovery of her kidney failure on a previous Christmas Eve, and the numerous challenges she…
…
continue reading
1
S1 E13. Mike needed a kidney transplant, & some help with social media. Andrea answered the call…with some unexpected results.
37:18
37:18
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
37:18
Mike was just seven years old when he lost his father to kidney disease, and many years later he learned that he was at an advanced stage of the inherited condition called polycystic kidney disease (PKD), and his kidneys were slowly failing. 2019 was a very challenging year and Mike experienced multiple medical issues. He knew he needed a transplan…
…
continue reading
1
S1 E12. How Jim became a kidney donor to his “brother” Darryl. Plus: Dr. Adam Bregman discusses helpful resources for living donation and some kidney transplant disparities.
40:44
40:44
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
40:44
In the previous episode we heard Darryl’s story, how he needed a kidney transplant because of kidney cancer. This week we meet Jim, who responded to “The Big Ask,” and donated a kidney to his close friend Darryl. Jim shares with us his side of the story, explaining why doing this for his “brother” was so important to him, and he describes his overa…
…
continue reading
1
S1 E11. After surviving kidney cancer and receiving a living donor kidney transplant, Darryl donates his experience in return – as a mentor and guide.
29:53
29:53
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
29:53
In our last episode, the first of several episodes celebrating National Donate Life Month, we sat down with Jennifer Martin from the National Kidney Foundation and learned about “The Big Ask, The Big Give”, a program dedicated to helping people with chronic kidney disease find their living kidney donor. In this episode we meet military veteran Darr…
…
continue reading
1
S1 E10. “The Big Ask, The Big Give” program from National Kidney Foundation opens the door to living donations.
24:46
24:46
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
24:46
Every year, April is National Donate Life Month. This is an annual time for increasing awareness of the importance of registering as an organ donor or saving a life by being a living donor. And for kidney transplants, living donation offers the best possible outcomes for recipients. But asking someone to give a kidney can be daunting, and the proce…
…
continue reading
1
S1 E9. A counseling psychology perspective on solid organ transplants with Dr. Camilla Nonterah. Plus: Florida transplant recipients discuss the ongoing impact of COVID.
50:09
50:09
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
50:09
Our first guest on this episode is counseling psychologist Dr. Camilla Nonterah, who discusses the importance of understanding and supporting transplant patients from both biological and psychosocial perspectives. She also reflects on the impact COVID is having on the mental health of transplant patients. During this episode we also hear from Barba…
…
continue reading
1
S1 E8. Benji’s Story: How friendships, transplants and pandemic disinformation can dramatically alter the course of our lives.
32:13
32:13
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
32:13
20 years ago, a young Benji Lafitte had his promising basketball career cut short by kidney failure, and he would go on to depend on dialysis for the next two decades. After almost giving up on the transplant process, an old basketball rival persuaded Benji to engage again with a transplant center. Benji joins us on this episode of Kidney Transplan…
…
continue reading
1
S1 E7. When a transplant surgeon receives a transplant, featuring Dr. Robert Montgomery. Plus: Fostering workforce diversity and preventing burnout.
36:19
36:19
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
36:19
We talk with kidney transplant surgeon Dr. Robert Montgomery about his own experience of receiving a heart transplant three years ago. This led him to a new understanding of the challenging “new normal” for patients after a transplant, which involves multiple medications and many new responsibilities. We also discuss the evolving impacts of the ong…
…
continue reading
1
S1 E6. Is talking about health equity translating into action? Plus: The transplant workup. Featuring kidney transplant surgeon Dr. Velma Scantlebury.
36:48
36:48
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
36:48
We are joined by history maker Dr. Velma Scantlebury, who became the first Black female transplant surgeon in the US in 1989. In a wide-ranging discussion we ask whether all the current talk about health equity is resulting in real action, and we explore several current examples of intentional change. Firstly, the “Boldly Against Racism” Campaign a…
…
continue reading
1
S1 E5. Taking kidney transplants closer to the people in rural Michigan. With Dr. Silas Norman.
31:02
31:02
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
31:02
Not everyone lives close to a hospital. In this podcast we discuss two potential challenges in managing chronic kidney disease and kidney transplants: the first is care when you live a long distance from specialist care, and the second is potential financial barriers. Our guest in this episode, Dr. Silas Prescod Norman, tells us about some very rea…
…
continue reading
1
S1 E4. International perspectives on organ donation and transplantation with Dr. Joyce Trompeta. From California to Hawaii, then on to Japan.
25:39
25:39
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
25:39
In this episode we meet Dr. Joyce Trompeta, A Nurse Practitioner (NP) specializing in transplantation, and an Associate Professor in the school of medicine, at the University of California, San Francisco where she conducts outcome research in the department of surgery. Dr. Trompeta discusses several areas of interest, including her concerns about d…
…
continue reading
1
S1 E3. How the UNC Chapel Hill Latino Transplant Clinic is increasing access through culturally competent care. UNC Chapel Hill Latino Transplant Clinic, Part 2
30:41
30:41
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
30:41
How the UNC Chapel Hill Latino Transplant Clinic is increasing access through culturally competent care. UNC Chapel Hill Latino Transplant Clinic, Part 2 Featuring Transplant Social Worker Daniela Matz and clinic founder Dr. Pablo Serrano. In our last episode we met José and Xiomara Flores and heard about their five-year journey from kidney disease…
…
continue reading
1
S1 E2. José and Xiomara Flores share their living donor transplant journey. UNC Chapel Hill Latino Transplant Clinic, Part 1
34:30
34:30
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
34:30
In this episode we’ll hear from José a patient, and Xiomara, his wife and donor, as they describe the challenges they experienced in their quest for a kidney transplant, and the joy they have felt since then. We’ll also hear from transplant social worker Daniela Matz, who assisted them. The Census Bureau estimates that there are over 60 million His…
…
continue reading
1
S1 E1. Impact of pandemic on immunosuppressed, & the meaning of meeting people where they are.
45:00
45:00
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
45:00
Episode 1: Impact of Pandemic, & Meeting People Where They Are Welcome to Kidney Transplant Conversations. The COVID-19 pandemic has everyone asking a lot of questions, especially transplant recipients, and those waiting for a transplant. In this episode we discuss the impact of the pandemic, talk about masks and vaccines, and how the pandemic is i…
…
continue reading
1
Episode 11 - What Advice Would I Give - Getting Listed
16:26
16:26
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
16:26
Considerations about getting onto the transplant list
…
continue reading
A memorable result and a moment I will never forget!
…
continue reading
1
Episode 9 - How I am physically and emotionally
10:22
10:22
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
10:22
How am I physically now. How I feel. What emotions have bubbled up.
…
continue reading
1
Episode 8 - My Husband’s perspective of Sept 25-26
11:28
11:28
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
11:28
Aidan’s version of what happened on Sept 25 & 26
…
continue reading
My thoughts and feelings upon waking up.
…
continue reading
1
Episode 6 - Pre-Op upon arriving at hospital
13:23
13:23
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
13:23
What happened between arriving at Brigham & Women’s Emergency Dept and going into the transplant surgery
…
continue reading
Tying things up. Packing. Celebrating a birthday. A whirlwind 6 hours!
…
continue reading
1
Episode 4 - What were you doing when you received the call?
10:52
10:52
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
10:52
Set the scene.... and then that amazing call is received! What was my reaction?
…
continue reading
1
Episode 3 - What were my feelings like before the transplant?
13:23
13:23
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
13:23
Fight or flight? Determined or depressed. Feelings in 2017 vs 2018.
…
continue reading
1
Episode 2 - What life was like before the transplant
18:40
18:40
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
18:40
Dialysis. Energy. Aches and Pains. Feelings and Thoughts.
…
continue reading
1
Episode 1 - Medical Background Pre-KidneyTransplant
14:20
14:20
Später Spielen
Später Spielen
Listen
Gefällt mir
Geliked
14:20
Why did I need a kidney transplant?
…
continue reading