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Fibro Podcasts

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Fibromyalgia Podcast®

Tami Stackelhouse

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Are you tired of feeling like a prisoner in your own body? The Fibromyalgia Podcast® is here to help you reclaim control of your life and health! Along with her Fibromyalgia Wellness Framework℠, host Tami Stackelhouse shares her joy and expertise, plus the tips and tools that helped her go from disabled to thriving. In the Fibromyalgia Podcast®, Tami brings together top fibromyalgia experts and advocates, from doctors and researchers to coaches and alternative providers, creating a virtual d ...
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Fly Girl with Fibro

Fly Girl with Fibro

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Life from the point of view of someone living with some invisible illnesses. Nothing major, just breaking the stigma of what illness is “supposed to look like.” Real life, no filters. Support this podcast: https://podcasters.spotify.com/pod/show/flygirlwithfibro/support
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Fibrosis Quística y Fertilidad

InstitutoBernabeu

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La fibrosis quística es una enfermedad crónica y progresiva, que aparece en las primeras etapas de la infancia y que afecta a múltiples órganos del cuerpo, (como son los pulmones, intestinos, páncreas, hígado...) Esta enfermedad la provoca la producción de secreciones espesas que dan lugar a obstrucciones e infecciones Autor: InstitutoBernabeu/
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Fibro com Fibra

Fibro com Fibra

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O relacionamento com a fibromialgia pode ser um fardo bem pesado quando o portador não tem informações suficientes sobre o que é e como agir para ter um pouco de qualidade de vida e diante das pessoas que desconhecem a doença. O nosso objetivo é levar um conteudo que te ajude a melhorar seu dia a dia e te traga conforto emocional. - Instagram/ Tio Tok: @fibrocomfibraoficial - Whatsapp: (11)99787-6698 - email: fibrocomfibraoficial@gmail.com
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Spotlight on Pulmonary Fibrosis

Boehringer Ingelheim

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In this podcast series, we bring together leading physicians, patients and patient advocates from Europe and Israel to discuss topics that are important for patients with pulmonary fibrosis. Each of the episodes will address a specific topic with the overarching objective to provide support to patients throughout the different stages of their journey.
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Mind Your Fibromyalgia Podcast

Olga Pinkston MD

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Mind Your Fibro podcast is dedicated to fibromyalgia.Dr. Olga Pinkston, the host and board-certified rheumatologist, discusses up-to-date information about fibro, its treatment, and the biology and psychology of this condition. It covers pain science education and the current complementary and alternative methods available to improve your symptoms. Many things influence the development of fibromyalgia, trigger fibro flares, and produce other symptoms like IBS/irritable bowel syndrome, depres ...
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Me tocó vivir con Fibromialgia

Gina Elvira

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Es cansado ser prisionero de tu propio dolor. Soy Gina Elvira: madre de 4, bailarina de flamenco, ama de casa y tu conductora. Te presento un podcast en español sobre el mundo de la fibromialgia. Un espacio donde encontrarás apoyo, comprensión e información única sobre este tema. Dirigido también a personas que quieren cambiar su percepción y brindar más entendimiento a sus seres queridos que la padecen. Sigue mi blog! https://metocovivirconfibromialgia.tumblr.com
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Breathe In: A Cystic Fibrosis Podcast

Gunnar Esiason and the Salty Cysters

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A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cy ...
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Cystic Fibrosis in Focus

ReachMD

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Cystic fibrosis (CF) is one of the most prevalent global congenital disorders, affecting some 70,000 individuals worldwide and 30,000 children and adults in the United States. While clinical efforts are expanding worldwide to improve diagnostic testing and treatment approaches for this progressive lung disease, targeted therapies for CF against any specific mutation remain elusive. The Cystic Fibrosis in Focus series gathers the latest information from leading medical experts devoted to adva ...
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WTCF! A Cystic Fibrosis Podcast

What The CF! A Cystic Fibrosis Podcast

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When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey. We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living wit ...
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Wisdom From The Other Side Of Recovery from Fibromyalgia, ME, CFS, POTS & MCS

Dan Neuffer

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Dan Neuffer author of CFS Unravelled and creator of the ANS REWIRE recovery program shares his knowledge on healing and recovery from ME, CFS, Fibromyalgia, POTS & MCS. Episodes include discussions as well as interviews with recovered patients and expert practitioners. **MEDICAL DISCLAIMER**: Dan Neuffer, CFS Unravelled or ANS REWIRE do not provide medical advice, and the information available in this video does not offer a diagnosis or medical advice of any kind. The content are opinions an ...
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Rare Disease Diversity, Jenifer Waldrop 34:48

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I encourage everyone to attend conferences when you can. I meet the most interesting experts in the field of the nonprofit world. From scientists, to pharma, to other nonprofit execs like me. I was thrilled to meet Jenifer Waldrop. She joined the Black Women’s Health Imperative as the Executive Director of the Rare Disease Diversity Coalition (RDDC…
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Goal Setting to Empower Your Fibromyalgia Journey with Kerstin Goldstein 59:51

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When it comes to goal setting, New Year’s resolutions can feel like an exciting and hopeful way to start fresh. The problem is, for most people, they’re too big and idealistic that they fall by the wayside by mid-January. Especially when we’re living with a chronic condition like fibromyalgia, we have to get realistic about not only what we want to…
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Special Invitation to the Fibromyalgia Wellness Summit! 10:45

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Join our 10-Day FREE Fibromyalgia Wellness Summit January 20-31 — Register by December 31st for exclusive bonuses! What is the Fibromyalgia Wellness Summit? A summit is like an online conference. The Fibromyalgia Wellness Summit will provide in 10 days what you would learn in five months on the Fibromyalgia Podcast! What makes this summit different…
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Replay: Special #1: The Best Way I Know To Feel Better 32:22

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As a master Certified Fibromyalgia Coach®, author, and fibro podcaster, the questions I’m asked more than any others are: How do I get better? How do I improve my Fibromyalgia so I can get back to living the life I want to live? While those sound like simple questions, they do not have simple answers. We all have similar symptoms, what helps you fe…
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Long Covid Research and Innovative Treatment with Dr. Keith Ellis: Ask the Coach 1:28:09

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COVID-19 has affected many of us; for some, the journey still hasn’t ended. For the past four years, Tami has received a ton of questions about the intersection of COVID-19, long COVID, and fibromyalgia. Unfortunately, it’s been tough to find good answers with the spread of conflicting information and misinformation. Today, Tami is excited to be jo…
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Melissa Yeager, Claire's Place Foundation 44:58

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Melissa Yeager, Executive Director and Co-Founder of Claire’s Place Foundation Since the planning stages of Claire’s Place Foundation, Melissa has spent countless hours working for the cause and, of course, raising her two children, Claire (the foundation’s namesake) and Ellie. With many years’ experience in project management and event planning, s…
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PTSD: Managing Stress 24:53

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This podcast is about my current stressor and how I deal with stress when it starts to become paralyzing/debilitating. When I am very stressed out I tend to do nothing. There doesn’t seem to be a way forward. However, I’ve learned exercising and communicating how I feel with my loved ones is very helpful since PTSD symptoms can become worse.…
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Rock Star, Emily Schaller: one on one. 30:39

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Emily Schaller, 42, is a heroine with one goal in mind, to Rock CF. A lot of laughs on this podcast with my friend Emily! She talks about her health, the Foundation, new and old legislation and what's coming up in 2025! Equal parts spark, wit and humor, Emily is claiming her victories against cystic fibrosis having launched the Rock CF Foundation i…
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Soft Hugs for Mommy with Mandy Farmer 53:38

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Navigating chronic illness from a family perspective can be challenging for everyone involved. From small changes to daily routines to more significant shifts in family dynamics, learning how to adapt to this new normal can be difficult, especially for children. Today, Tami introduces you to Mandy Farmer and her book, Soft Hugs for Mommy, created w…
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Healthcare funds you could be eligible to get, but probably don't know about. 35:39

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“Charity Care is the best kept secret in healthcare.” says Eli Rushbanks "Only 29 percent of the people who should be helped by 340B, are helped." If, like me, you have not heard about Charity Care or Dollar For, I am glad you're here! This podcast will tell you about both Charity Care and the nonprofit, Dollar For. I learned about the program duri…
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Rare Disease Ph.D. Beth Vanstone and Laura Bonnell 27:39

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Are titles important? As a rare disease parent, we think you're worthy of a Ph.D. Listen to our fun conversation about all things rare and the much needed title we may need (or not) to get things done. As a reminder, Beth Vanstone is the mother of two daughters, one who has CF. Madi is 23 years old. Beth is a huge advocate in Canada, and much of th…
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Finding Strength and Support In Uncertain Times 50:00

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“One of my core beliefs is that something good can come out of everything.” - Tami Stackelhouse So much of life is uncertain, and as a chronic pain patient, there’s no shortage of things to stress you out and make you worried. From finding out that the medication you need is out of stock to facing the threat of a layoff or having a health scare, th…
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Private Patient Advocate offers you help 31:46

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What is a Private Patient Advocate? Do you need one? Laura talks to Dr. Elena Borrelli who is a Doctor of Medical Science and a Board-Certified Patient Advocate who helps people and families with their health care journey. She practices in Shelby Township, Michigan. Dr. Borelli manages their healthcare as she tries to help them live their healthies…
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Running a marathon with CF: Dylan Mortimer 35:10

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Dylan Mortimer did the NYC Marathon. If you know him, you know that he had two double lung transplants. One in 2017 and one two years later in 2019. His second transplant was in NYC and Dylan talks about what it was like to go back to the streets he could barely walk, pre-transplant. It so touching as Dylan chairs his story with us. I appreciate al…
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Navigating Vertigo with Fibromyalgia 33:19

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“The room's not moving, but you still feel like you're on a boat. It just feels terrible.” About 60 to 70% of all fibromyalgia patients also deal with dizziness, which shows up in two main ways: lightheadedness and vertigo. With lightheadedness, you’ll typically experience a feeling like you might faint or pass out, whereas with vertigo, it feels l…
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Partnership to Improve Patient Care: legislation explained! 43:51

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Patient rights: do you know about the rights you have in regard to healthcare? There is a lot of information for you that Sara and Thayer serve to you here, in terms you can understand. They both work for the Partnership to Improve Patient Care, or PIPC (a coalition). Sara Traigle van Geertruyden is the Executive Director at PIPC. Thayer Roberts is…
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The Healing Power of Authentic Storytelling with Meg Stafford 53:26

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“When we share our stories, it helps everyone around us.” As our students go through their training programs and approach graduation, many of them start to think about sharing their fibromyalgia stories. The idea can be daunting, especially with fibromyalgia, because there’s a stigma that comes with it. For many of us, it feels safer to keep it to …
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Heather Trammell: CF and finding your voice 37:53

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Life with CF is different for everyone. We have a lot of the same challenges, but we do grow with the disease differently. Heather Trammell, CF Mom to 7 year old Charlie is married to Christopher, (for 13 years now). Heather is a legal assistant in the compliance department at Credit Acceptance. Heather has so much CF Mom wisdom. I am glad to call …
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Touraj Manshadi falling through the gaps in health policy 36:41

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We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell. Beth is introducing us to 32-year-old To Touraj Dehghan Manshadi who has a CF mutation that is common to Iran, but rare in Canada where he lives. You may be surprised to learn Canada does not have a rar…
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How to Handle Fibromyalgia Symptoms in Your Family 30:04

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“What do you do if you notice fibromyalgia symptoms in a family member?” A few weeks ago, one of the students in our Certified Fibromyalgia Coach® training class raised this question, and Tami hears variations of it all the time. Whether it’s your kid, sister, mom, or another relative, figuring out how best to handle the situation can be difficult.…
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CURE FOUND MSU EXPANDS TO UM 39:10

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I always tell this group of undergrad students that they are our future, and that makes the future look bright. Atef Choudhury and Naim Mashni are incredible people and students. They're both Seniors at Lyman Briggs College -- majoring in Human Biology. They're minor is in business and they're on the pre- med track. Atef and Naim are the co-founder…
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Laura Bonnell - From news reporting, to CF and beyond. 31:04

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From news reporting, to CF and beyond. Laura talks about her journey. The Bonnell Foundation: Living with cystic fibrosis is 14 years old. "I was so hopeful all those years ago, that my Foundation would take off, and now look at it! We have helped CF families from Michigan to California with financial assistance, lung transplant grants and Educatio…
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E24: Snippet - Beyond Knowledge: Unlocking Recovery Progress for ME/CFS, Fibromyalgia, POTS, MCS, PVFS or long-covid 13:31

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In over a decade of helping people recover, I have found that whilst knowledge can be key, often other factors are more important. In this video, we delve into why knowledge alone isn't enough for recovery from chronic illness like ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid). We uncover potential missing pieces in your journey. Discover w…
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Preventing vs. Treating Your Fibromyalgia Symptoms 27:09

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Whether we're talking about pain, fatigue, or brain fog, there’s a massive difference between preventing your symptoms and trying to treat them after they’ve flared up. Getting your symptoms back to a manageable place in the middle of a fibro flare is like trying to catch a runaway train. Sometimes, when that happens, the only thing to do is to let…
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Sorcha's CF journey: from diagnosis to addiction and discovery 44:28

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We discuss suicide in this podcast. This could be a trigger for some for you. Please remember the National Suicide Hotline can be reached via text or by calling 988. Sorcha Slyvester-Martin from diagnosis to drugs and discovery. When she was three days old, she was diagnosed with Cystic Fibrosis. She says she had several near-death experiences. Her…
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Special #4: How Do You Become a Certified Fibromyalgia Coach®? 35:43

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Welcome to the final episode of our special Be a Coach series. So far, I’ve answered questions about our Certified Fibromyalgia Advisor® class and what it takes to become a Certified Fibromyalgia Coach®. Some of the topics covered in the first three parts of this special series were what a Certified Fibromyalgia Advisor® and a Certified Fibromyalgi…
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Fibromyalgia, Motherhood, and Finding New Ways to Thrive with Lauren Vazzano 57:34

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“You need to make room for yourself.” - Lauren Vazzano If you’re struggling with fibromyalgia and juggling the responsibilities of motherhood, you’re not alone. The good news is that you can feel better with the right strategies and support. Making yourself a priority and improving your health is the best way to support your family and help them to…
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E23: Lynne's ME/CFS Recovery Story 1:24:25

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Join us in this transformative episode as Lynne, an experienced nurse, bravely shares her journey to recovery from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). As a medical professional, she had been skeptical about the validity of ME/CFS diagnoses. However, Lynne's perspective shifted dramatically after facing years of debilitating…
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My brother and me! Rare, a bit of CF & COTA! 41:11

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In this podcast you'll meet my brother Noah Teicher, and my nephew Colton Teicher. I have two younger brothers, but my brother Noah (the middle child) has two boys who had a rare disease. And we talk about their journey from having a rare disease to being cured. Noah and Colton talk about their journey with the Children’s Organ Transplant Associati…
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Special #3 - Why Should You Consider Being a Certified Fibromyalgia Coach®? 37:37

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Welcome to episode 03 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. In episode one of the series, I explained what a Certified Fibromyalgia Advisor® is and what a Certified Fibromyalgia Coach® is. Episode two of the series…
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Practical Fibromyalgia Surgery Tips You Need To Know with Deb Thompson 1:09:25

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“Give yourself some grace and just know that you've done this for a reason, and it will make your life better.” - Deb Thompson Many times, people with fibromyalgia put off surgeries that they need to have because they're worried about the inevitable fibro flare that's coming. When we have surgery, chances are that it’s going to cause a fibro flare.…
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Special #2: Who Makes a Good Certified Fibromyalgia Coach®? 34:54

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Welcome to episode 02 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. I cover all the basics… the who, what, when, where, why, and even the how. Don’t understand what a Certified Fibromyalgia Coach® or Adviser is? No problem…
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Fibromyalgia Stories of Hope & Healing #9 1:30:15

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In the US, approximately 1 in 13 women and 1 in 20 men are diagnosed with fibromyalgia. To put those numbers in perspective, breast cancer affects 1 in 8 women, cervical cancer affects 1 in 13 women, and colon cancer affects 1 in 25 women and 1 in 23 men. Yet, even though the prevalence of fibromyalgia is in a similar range, screening for these can…
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E22: Snippet - Is Looking For Treatments Stopping You Recovering From ME/CFS, PVFS(long-covid), Fibromyalgia & POTS 14:17

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Looking for treatments to help you recover from ME/CFS, PVFS (long-covid), Fibromyalgia or POTS or related illnesses should surely be a good thing. It’s what most of us do whilst we are ill until we eventually give up or are told ‘there is not cure, so you can’t recover’. But whilst it can be key to your recovery breakthrough, it can also have sign…
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Special #1: The Best Way I Know To Feel Better 32:22

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As a master Certified Fibromyalgia Coach®, author, and fibro podcaster, the questions I’m asked more than any others are: How do I get better? How do I improve my Fibromyalgia so I can get back to living the life I want to live? While those sound like simple questions, they do not have simple answers. We all have similar symptoms, what helps you fe…
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E21: Dr Michael Lenz on treating Fibromyalgia, CFS, POTS - treating children & the connection with ADHD 1:08:59

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In this episode, we sit down with Dr. Michael Lenz, a dedicated physician specializing in fibromyalgia, ME, CFS, POTS, and related illnesses. Dr. Lenz discusses his conservative approach to medications and emphasis on lifestyle medicine, particularly for children with these conditions. A notable part of the discussion delves into the common comorbi…
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How To Find A Good Doctor? Ask the Coach 42:33

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“I’m having trouble finding my team, as you call it. I often feel so alone in this. How can I best find a doctor to suit my needs?” Choosing your healthcare team is a highly personal process that requires you to really understand your specific wants and needs. There are so many options, and, let's face it, there aren’t a whole lot of good doctors o…
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BONUS: Overcoming Fibromyalgia on Kingdom Employee 29:17

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Today, Tami has another bonus episode for you! Tami was recently interviewed by Meghan DeVito for the Kingdom Employee podcast. Once again, she’s sharing this conversation with you as a peek behind the curtain into an area of her life you normally don’t see. In this conversation, Tami shares more about her spirituality and how her Christian beliefs…
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Diary of a Dying Girl, Diane (Mallory) Shader Smith 27:26

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Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, "Salt in My Soul". This book gave insight into how Mallory was feeling during her CF fight. Her deepest thoughts, and life lessons. Diane Shader Smith is now releasing a second book on b…
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Cherry Blossoms for Fibromyalgia: From Fragile to Beautiful Strength 28:03

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In 2009 - two years after her diagnosis - Tami started working with a coach and making positive changes in her life. At the same time that she saw her fibromyalgia begin to improve, she started noticing beautiful cherry blossom trees everywhere. They weren’t new, but her awareness of them was. Knowing that they frequently appear in Japanese and Chi…
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Special Insurance for CF families (and others) in MI 33:29

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Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access to the program has nothing to do with your household income. The program has a lot of benefits. CSHCS covers transportation that can include airfare a…
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E20: Snippet - How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)? 21:12

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It’s finally time to share some of my health struggles during the last 6 years. It seems like a good opportunity to speak about how resilient ME/CFS, Fibromyalgia, POTS, MCS PVFS (or long-covid) recoveries can be – after all, when we recover we often can’t help but ask ….”will it last?” SHOWNOTES: https://cfsunravelled.com/episode20 **MEDICAL DISCL…
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BONUS: Tami Built The International Fibromyalgia Coaching Institute on Build. Grow. Profit. 34:48

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In this special bonus episode, Tami is sharing a side of things you normally don’t see. Today, we’re going behind the scenes of her business to share an interview she did with Cassie Parks from build. grow. profit. Cassie’s podcast is all about how people built and grew their businesses to the point of profitability. If you have ever been curious a…
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Balancing Between Acceptance and the Hope of Feeling Better 34:49

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With fibromyalgia, balancing acceptance and hope can sometimes feel a little like being stuck between a rock and a hard place. Acceptance isn’t about staying where you are. It’s about embracing the unknown and allowing your body right now while being open to letting her be who she needs to be and become who she needs to become. On the other side, h…
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BONUS: Tami Stackelhouse on Loving Our Life's Work 1:08:28

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Today, I have another bonus episode for you. Back in April, I was interviewed by Adam Devaney for the Loving Our Life’s Work Podcast, and Adam has graciously agreed to let me share that conversation with you. In our conversation, we explore our purpose, authenticity, and the transformative power of self-discovery. I specifically dive into how I cam…
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Remembering Matt McCloskey of Take a Breather 37:29

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Shortly after we did this podcast Matt died from complications of cystic fibrosis. With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing this podcast to shine a light about what a great man Matt was. He speaks in this podcast about concern for his health. Thanks to Jenn, his family and to M…
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Feel Great In and About Your Body—Even With Fibromyalgia with Kim Hagle 1:06:08

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Movement is not a way to pay for what you’ve eaten or shrink your body. It’s a way to care for your body and feel how you want to feel in it. If we reframe our thinking, moving away from focusing on what we want our bodies to look like and toward what we want them to do, it becomes easier to treat ourselves with kindness and respect. You can’t cont…
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The Fearless Vagina: Ellen Dolgen 1:00:06

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As people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathering, and recommended they speak to women with CF about menopause. They agreed. It's time. There is so little discussion and education about women and …
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BONUS: Navigating Fibromyalgia on Unweaving Chronic Pain 1:09:49

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Today, I'm sharing the other half of my conversation with Dr. Andrea Moore. In the previous episode, I interviewed Dr. Andrea about her work. Dr. Andrea has her own chronic pain story, and she now helps those suffering from chronic pain find harmony and safety within their bodies. Today's bonus episode is a replay from her podcast, Unweaving Chroni…
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Dr. Caleb Bupp, Rare Genius (in our opinion) 43:39

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Dr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he's a genius. You will love this podcast. We talk about rare disease, his family and how he discovered and helped families who had no rare disease answers, until they met him! An absolute scientific rock star. …
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